Given the rapid growth of palliative care, interdisciplinary leadership has become essential. With the increase of nurses stepping into the role of palliative care program leader, it is important to understand leadership concepts and skills, which can make the difference between surviving and thriving.

Developed with feedback from the CAPC and Hospice and Palliative Nursing Association (HPNA) 2018 nursing leadership focus group, CAPC has curated a collection of continuing education courses and informational resources to provide nurses with building blocks for leading teams, and steering high quality, sustainable programs.

For information about CAPC clinical CE training for nurses, click .

What’s in the Toolkit

Integrating foundational principles and quality standards of upstream palliative care for patients living with serious illness.

An In-Depth Look At Palliative Care And Its Services

Defining palliative care, which patients need it, how it is delivered, and how palliative care differs from hospice.

Introduction to Palliative Care in the Community

Defining community-based palliative care: which patients need it, how it is delivered, and how it differs from inpatient palliative care.

National Coalition for Hospice and Palliative Care

Home to the National Consensus Project for Quality Palliative Care, the Coalition was founded by the leading hospice and palliative care organizations to coordinate and collaborate on issues and activities of importance to the interdisciplinary hospice and palliative care field.

Acquiring a working knowledge of business language, business planning and budgeting, and making the financial case for palliative care.

Building the Business Plan for Your Hospital Program

Building a budget and a business plan for the inpatient program. Includes business planning tools.

Building the Business Plan for Community-Based Palliative Care

Building a budget and a business plan for the community-based program. Includes business planning tools.

The Business Case for Palliative Care: Translating Research Into Program Development in the U.S.

Ten principles that form the basis of the palliative care business model. Journal of Pain and Symptom Management, 2015.

Palliative Care Ensures Value

One-page infographic to introduce your organization leaders, referrers, and health plans to the quality, satisfaction, and utilization improvements resulting from palliative care.

Understanding palliative care program financing and reimbursement for palliative care services.

Payment Glossary

Defines key terms in payment vocabulary. Center to Advance Palliative Care, 2017.

Downloadable Tools for Making the Case

These downloadable tools can be used to make the case for palliative care investment with organization leaders, health plans, colleagues, and community partners.

Optimizing Billing Practices

Toolkit with billing and coding best practices for palliative care services delivered in the hospital or the community.

Financing a Palliative Care Program

Toolkit for building a business plan and budget, forming financial partnerships, and operating the program efficiently.

Interdisciplinary Staffing Cost Estimator
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Average costs per team member by discipline, taking into account non-billable time.

Hospital Palliative Care Program Staffing Worksheet
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Project staffing FTE per discipline based on expected patient volumes. Center to Advance Palliative Care, 2015.

Community Palliative Care: Estimating Average Time/Visit to Determine Capacity
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Template and example for estimating time per patient visit for a new visit and for follow-up/subsequent visits, including a calculator for generating a weighted average visit time. Center to Advance Palliative Care, 2017.

Template for Estimating Staff Costs for a Visit and a Patient
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Model your assumptions about costs based on the variables of staff cost, staff time allocation, and patient volume.

Payment Quick Tips: Value-Based Payment Introduction
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Introduction to value-based payment and its implications for palliative care. Center to Advance Palliative Care, 2019.

Appreciating and meeting the unique needs of various patient populations appropriate for palliative care.

Patient Identification and Assessment

Toolkit for finding the right patients at the right time to address gaps in care.

Integrating Palliative Care into Population Management

Improving operations and training clinical staff to identify, stratify, and meet the needs of patients living with serious illness at the population level.

Dementia: Relieving Suffering for Patients and Families

Identifying and addressing the sources of suffering for patients and families living with dementia.

Chronic Obstructive Pulmonary Disease (COPD)

Assessing and addressing sources of suffering for people living with chronic obstructive pulmonary disease (COPD) and their caregivers.

Heart Failure

Interventions to reduce suffering along the disease trajectory for people living with congestive heart failure (CHF) and their families.

The American College of Surgeons Trauma Quality Improvement Program (ACS TQIP) Palliative Care Best Practices Guidelines

Guidance on palliative care integration with trauma care. American College of Surgeons.

Incorporating core principles for a healthy, high-functioning interdisciplinary palliative care team.

Strategies for Maximizing the Health/Wellness of Palliative Care Teams

Monograph on processes that promote team health. Center to Advance Palliative Care, 2014.

Clarifying Goals of Care

Strategies for eliciting patient goals and preferences to inform treatment decisions.

Advance Care Planning Conversations

How to initiate and conduct conversations about advance care planning.

Improving Team Performance

Strategic planning for new or veteran programs, and a framework for identification of barriers to team efficiency and team health.

Consult Etiquette: Communicating with Referring Providers

Guidance for palliative care teams to build collaborative relationships with referrers.

Quick Tips #1: Hiring New Team Members
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Hire a stable, high-performing team. Center to Advance Palliative Care, 2018.

Quick Tips #2: Onboarding New Team Members
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Best practices for onboarding new staff to the palliative care team. Center to Advance Palliative Care, 2018.

Quick Tips #3: Team Health and Resilience
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Ensure strong morale and healthy team functioning. Center to Advance Palliative Care, 2018.

Quick Tips #4: Role Clarity for a Highly Effective Interdisciplinary Team
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Clarify team roles and responsibilities to ensure positive relationships and productivity. Center to Advance Palliative Care, 2018.

Quick Tips #5: Running Effective Interdisciplinary Team Patient Care Meetings
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Best practices in efficient, effective IDT meetings. Center to Advance Palliative Care, 2018.

Understanding how palliative care programs work with seriously ill patients and families to relieve suffering and improve quality of life.

National Consensus Project for Quality Palliative Care, 4th edition

The National Consensus Project (NCP) Clinical Practice Guidelines are the national standard for high quality palliative care. National Consensus Project for Quality Palliative Care, 2018.

The CAPC Guide to Building a Hospital Palliative Care Program

Comprehensive manual on hospital-based palliative care program design. Center to Advance Palliative Care, 2008.

Palliative Care in the Home: A Guide to Program Design (PDF Download)
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Essential reference for starting home-based palliative care, including design principles and profiles of sustainable home-based programs.

Palliative Care in the Home: A Guide to Program Design (Purchase Link for Non-Members)

Essential reference for starting home-based palliative care, including design principles and profiles of sustainable home-based programs.

Course 1: Comprehensive Pain Assessment

Conducting a comprehensive pain assessment to guide safe and effective treatment.

Supporting the Family Caregiver: The Burden of Serious Illness

Assessing and supporting caregivers of people with serious illness.

Care Coordination

Guidance for all clinicians on improving communication and ensuring smooth transitions of care for patients living with serious illness.

Integrating palliative care impact on quality measures in health care, and how to demonstrate program value through measurement.

Measurement Best Practices

Use this toolkit to select program measures that demonstrate value to stakeholders and support quality care delivery. Overcome common measurement obstacles and synthesize program data.

Recommended Program Measures and CAPC Measurement Toolkit
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Recommended measures for inpatient and community palliative care programs, and using data to demonstrate value and perform continuous quality improvement.

Demonstrating Value to Stakeholders

Tools to make the case for palliative care resources and financial partnerships, including: the palliative care evidence base, and downloadable tools for presenting the case.

Quality Measurement and Accountability for Community-Based Serious Illness Care: A Synthesis Report of Convening Findings and Conclusions

Results of a recent convening of experts to define appropriate quality measures for this population.

Payment Quick Tips: Value-Based Payment Introduction
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Introduction to value-based payment and its implications for palliative care. Center to Advance Palliative Care, 2019.