Preventing Crises Through Whole-Patient Care
Supporting the Family Caregiver: The Burden of Serious Illness
Last Reviewed: March 10, 2016
What You’ll Learn
- Acknowledge the discrepancy between what is expected of family caregivers of people with serious illness and the resources provided to them in today’s health care system
- Recognize the multiple roles filled by family caregivers across the disease trajectory
- Identify common precipitants of burden experienced by family caregivers
- Recognize the critical role that all providers play in assessing and supporting caregivers from the first point of contact and across the illness trajectory
What You’ll Earn
CAPC members can earn the following free continuing education credits:
- Case Management: 1.00 CE
- Licensed Professional Counselors: 1.00 CE
- Medicine: 0.75 CME
- Nursing: 1.00 CNE
- Social Work: 1.00 CE (NYSED)
- Social Work: 1.00 CE (NASW)
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Tools & Resources
Zarit Burden Interview (ZBI-12)
Self-reported caregiver assessment.view
The Loneliness of the Long-Term Care Giver
Seminal article on the experience of caregiving. New England Journal of Medicine, 1999.members login
References: Supporting the Family Caregiver - The Burden of Serious Illness
Course citations. Center to Advance Palliative Care, 2016.members login
The Invisible Millions: Supporting Family Caregivers
CAPC National Seminar Intensive Session, 2016.members login
Atlas of Caregiving Tool
Tool used to draw a family care map to visually depict all of the people involved with the caregiver.download
Get Palliative Care
Information for patients and families about palliative care.view
National Alliance for Caregivers Resources
The National Alliance for Caregiving offers a variety of materials to support family caregivers, ranging from booklets and tip sheets to webcasts and conference materials.view
Andrew E. Esch, MD, MBA. Consultant, Center to Advance Palliative Care.
Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.
Elizabeth Mann, MD. Fellow, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai.