Pediatric Palliative Care Action Initiative

Convening a National Pediatric Palliative Care Conversation

Pediatric palliative care has grown rapidly over the past decade. Today, more children and infants living with serious illness have access to palliative care than ever before, and pediatric palliative care is increasingly making its mark as a key component of quality care delivery.

However, we know that our sickest kids still routinely lack appropriate access to high-quality palliative care.

Leveraging the growth and maturation of the field, in February 2019 a steering committee of pediatric palliative care leaders representing a variety of disciplines, organizations, and areas of focus convened to identify strategic solutions to major access barriers nationally. Using a consensus-driven process, the committee discussed the impact and feasibility of potential interventions to grow and strengthen the field.

We now seek guidance from the field. The steering committee hopes to engage a broad group of interdisciplinary pediatric palliative care professionals through feedback collection in a national survey to help rank potential action items. The results will be used to allocate time and resources to those activities deemed to be of the highest importance to the field.

All pediatric palliative care professionals are encouraged to contribute to this national dialogue by completing the survey.

Steering Committee Co-Chairs:

Sarah Friebert, MD
Director, Haslinger Family Pediatric Palliative Care Center, Akron Children’s Hospital
Faculty, Palliative Care Leadership Centers™

Diane E. Meier, MD, FACP, FAAHPM
Director, Center to Advance Palliative Care

Executive Advisors:

Joanne Wolfe, MD, MPH
Director, Pediatric Palliative Care, Boston Children's Hospital
Division Chief, Pediatric Palliative Care Service, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute

Chris Feudtner, MD, PhD, MPH
Director of Research, Pediatric Advanced Care Team, Children's Hospital of Philadelphia

Click here for a full listing of Steering Committee Members.

This initiative was made possible thanks to the generous support of funders, Trudy Elbaum Gottesman and Bob Gottesman and The Cameron and Hayden Lord Foundation, with additional support from the Louis H. Gross Foundation and the US Cancer Pain Relief Committee.