Measurement tells the story of your palliative care service: what it does, whom it serves, and its impact on outcomes important to patients, families, leaders, decision makers, funders/payers, and other stakeholders.

This toolkit provides guidance on measurement so that your program can:

  • Demonstrate value to stakeholders
  • Align your services with national palliative care quality standards
  • Manage your program operations
  • Perform continuous quality improvement

What’s in the Toolkit

Recommendations for program measures that are feasible to collect and that produce data that the program can use to achieve its goals.

Recommended Program Measures and CAPC Measurement Toolkit

Recommended measures for inpatient and community palliative care programs, and using data to demonstrate value and perform continuous quality improvement.

Palliative Care Quality Collaborative (PCQC)

PCQC is a membership organization that operates a national unified palliative care registry, which captures both program and patient-level data. Membership allows palliative care teams to track their performance over time, benchmark against their peers, and participate in quality improvement offerings.

A Decade of Data: Findings and Insights from the National Palliative Care Registry™ Webinar Recording
National Performance Benchmarks

Overview of national per-capita utilization and spending for different populations, to assist in target setting.

Palliative Care Clinical Care and Customer Satisfaction Metrics Consensus Recommendations

Payers and providers can use this tool to assess member satisfaction with case management and with the experience of care at network providers.

Quality Measurement and Accountability for Community-Based Serious Illness Care: A Synthesis Report of Convening Findings and Conclusions

Results of a recent convening of experts to define appropriate quality measures for this population.

Health IT Functionality and Reporting Checklist

List of HIT capabilities needed by palliative care programs for population management and data monitoring.

Synthesize data to manage the program efficiently, perform continuous quality improvement, and demonstrate value to stakeholders.

Demonstrating Value to Stakeholders

Tools to make the case for palliative care resources and financial partnerships, including: the palliative care evidence base, and downloadable tools for presenting the case.

Integrating Palliative Care into Population Management

Improving operations and training clinical staff to identify, stratify, and meet the needs of patients living with serious illness at the population level.

A Decade of Data: Findings and Insights from the National Palliative Care Registry™ Webinar Recording
Monitoring Team Effectiveness: Measuring with Metrics, Not to Metrics

Webinar presentation on how to leverage measurement for quality improvement and to demonstrate value.

Specialty Palliative Care Program Designation Crosswalk

Designations connoting high-quality specialty palliative care in both inpatient and community care settings. Includes a comparison of eligibility criteria, standards, and requirements for all available program designations.