Measurement Best Practices

Last Reviewed: March 4, 2019

Measurement tells the story of your palliative care service: what it does, whom it serves, and its impact on outcomes important to patients, families, leaders, decision makers, funders/payers, and other stakeholders.

This toolkit provides guidance on measurement so that your program can:

  • Demonstrate value to stakeholders
  • Align your services with national palliative care quality standards
  • Manage your program operations
  • Perform continuous quality improvement

What’s in the Toolkit

Recommendations for program measures that are feasible to collect and that produce data that the program can use to achieve its goals.

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Recommended Program Measures and CAPC Measurement Toolkit

Last Updated: February 3, 2019

Recommended measures for inpatient and community palliative care programs, and using data to demonstrate value and perform continuous quality improvement.

National Palliative Care Registry™

Last Updated: February 27, 2019

A publicly available national database of palliative care programs and operational metrics, free of charge to all palliative care programs. Submit program data to receive reporting and to track program growth and capacity over time. Compare your program to peers to help make the case for adequate staffing and program quality.

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Palliative Care Quality Network (PCQN)

Last Updated: February 3, 2019

PCQN is a membership organization that operates a national palliative care registry for clinical data. Their continuous learning collaborative provides teams with tools, data, and support to demonstrate value, build strong teams, and promote resilience in their clinicians.

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Global Palliative Care Quality Alliance (GPCQA)

Last Updated: February 3, 2019

GPCQA is a membership organization that operates QDACT, a national palliative care registry for clinical data. Membership allows palliative care teams to benchmark performace against others, and provides easy-to-use tools for improving quality.

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A Decade of Data: Findings and Insights from the National Palliative Care Registry™ Webinar Recording

Last Updated: August 11, 2019

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Measurement for Community Palliative Care

In this Virtual Office Hour, ask questions about how to select key program measures and how to use data to show the value of the palliative care program.

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Metrics that Matter for Hospices Running Palliative Care Services

In this Virtual Office Hour, ask questions about what to measure and how to interpret the data to evaluate the value of palliative care services to your hospice.

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National Performance Benchmarks

Last Updated: February 3, 2019

Overview of national per-capita utilization and spending for different populations, to assist in target setting.

Palliative Care Clinical Care and Customer Satisfaction Metrics Consensus Recommendations

Last Updated: February 3, 2019

Payers and providers can use this tool to assess member satisfaction with case management and with the experience of care at network providers.

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Quality Measurement and Accountability for Community-Based Serious Illness Care: A Synthesis Report of Convening Findings and Conclusions

Last Updated: February 3, 2019

Results of a recent convening of experts to define appropriate quality measures for this population.

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Health IT Functionality and Reporting Checklist

Last Updated: February 3, 2019

List of HIT capabilities needed by palliative care programs for population management and data monitoring.

Synthesize data to manage the program efficiently, perform continuous quality improvement, and demonstrate value to stakeholders.

Demonstrating Value to Stakeholders

Last Updated: March 4, 2019

Tools to make the case for palliative care resources and financial partnerships, including: the palliative care evidence base, and downloadable tools for presenting the case.

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Population Management and Palliative Care

Last Updated: March 4, 2019

Improving operations and training clinical staff to identify, stratify, and meet the needs of patients living with serious illness at the population level.

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A Decade of Data: Findings and Insights from the National Palliative Care Registry™ Webinar Recording

Last Updated: August 11, 2019

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Monitoring Team Effectiveness: Measuring with Metrics, Not to Metrics

Last Updated: August 11, 2019

Webinar presentation on how to leverage measurement for quality improvement and to demonstrate value.

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