Pediatric Palliative Care

Great strides have been made in improving care for adults with serious illness. Unfortunately, there is growing empirical evidence that the health care system has failed to meet the specialized needs of children.

Too many children undergo painful procedures and suffer from the symptoms of advancing disease without adequate relief. Families can feel abandoned and overwhelmed, and social supports to children and their families are woefully inadequate. Health care professionals themselves are often left without emotional support for the difficult work they do.

While the goals of pediatric and adult palliative care are the same – to relieve suffering for seriously ill patients and their families – clinical delivery of pediatric palliative care (PPC) differs fundamentally from adult delivery. PPC has experienced notable growth over the past decade, and providers no longer need to ‘go it alone’.  Download CAPC’s Pediatric Palliative Care Field Guide for a catalog of field resources, tools and training to promote PPC innovation and growth.

Download the presentation:  Pediatric Palliative Care: Making The Case, which can be used to describe the value of pediatric palliative care for patients, families, and health care organizations, and to identify action steps that health professionals can take to support pediatric palliative care integration with disease-directed treatment across the care continuum. 

CAPC’s Palliative Care Leadership Centers™ provide customized training and technical assistance to teams who treat children and want to provide expert, high-quality care.  Learn more about CAPC’s pediatric Palliative Care Leadership Center™ here. Members, access CAPC’s toolkit for pediatric palliative care programs here.

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