Pediatric Palliative Care

Great strides have been made in improving care for adults with serious illness. Unfortunately, there is growing empirical evidence that the health care system has failed to meet the specialized needs of children.

Learn more about CAPC’s pediatric Palliative Care Leadership Center™ here.

Too many children undergo painful procedures and suffer from the symptoms of advancing disease without adequate relief, despite the fact that modern medicine has the means to relieve their pain and improve most symptoms. Families can feel abandoned and overwhelmed, and social supports to children and their families are woefully inadequate. Health care professionals themselves are often left without emotional support for the difficult work they do.

In their training, physicians and nurses have received virtually no opportunities to practice the skills necessary for communicating effectively with seriously ill children and their families. Health care professionals also lack guidance on how best to manage the conflicting goals and values that can arise in difficult cases.

However, pediatric palliative care programs and organizations exist. CAPC’s Palliative Care Leadership Centers™ provide customized training and technical assistance to teams who treat children and want to provide expert, high-quality care.

Member organizations can also learn more and access CAPC tools, training and technical assistance through our courses, webinars, virtual office hours, topic-specific discussion forums and more. To log in to  CAPC Central,  members please click here.  To become a member organization, click here.