How to Address Vaccine Hesitancy for Patients Living with Serious Illness
It has been a year since the U.S. declared a public health emergency, and in just nine months, the first vaccine was approved for emergency use. Clinicians on the front lines of care are the most likely to have been offered a COVID-19 vaccine, and the majority have eagerly accepted. But even among health care workers, the same vaccine hesitancy that patients express is evident.
People feel differently about the vaccine—and the reasons aren’t strictly medical. Among health care workers, for example, the more highly educated and highly paid, the more likely they are to accept vaccination. A new study shows that a White male doctor in the Northeast, earning more than $200,000, had a 45% chance of being vaccinated; but a 45 year old Black female nursing assistant in the South, earning less than $50,000, had a 6% chance of being vaccinated. Health care workers cite the same reasons for vaccine hesitancy as the general public—they want to see more real-world experience with the vaccine (“maybe after another million people have gotten it”); less formal education correlates with vaccine skepticism; and health care workers of color cite mistrust, due to experiences with institutionalized racism.
There are a variety of reasons for vaccine hesitancy, but there is a bright light: recent survey data shows that the majority of adults will turn to their doctors, nurses, and other health care providers, when making decisions about the COVID-19 vaccine (see Figure 1 below).
Figure 1: Survey data shows that 8 in 10 people will turn to health care providers when making a decision about the COVID vaccine
Palliative Care Clinicians Have a Unique Opportunity
The patients that palliative care clinicians care for, those living with serious illness, are among the most at risk for severe COVID outcomes. After all, they are already living with serious illness, and would have less ability to recover if they did get a severe case of COVID. Those with a serious illness have a strong medical indication for COVID vaccination.
"We palliative care clinicians have a secret weapon: in many cases, we have already earned the trust of our patients."
We palliative care clinicians have a secret weapon: in many cases, we have already earned the trust of our patients. We’ve been talking to them about what matters, how to manage their illness, and how to cope with tough situations. When we speak with them about the COVID vaccine, we already have a track record of trust. Our patients know what we can do and what we care about—namely, them. So palliative care clinicians have a unique opportunity to address vaccine hesitancy.
Some states are prioritizing people living with a serious illness (“high-risk adults”) for vaccination distribution. At the time of publication of this blog, 56% of states enable access for high-risk adults without age restriction (see Figure 2). While vaccination planning and distribution is underway, we can help our patients by offering information through respectful dialogue. The hope is to help people move forward and make a plan for inoculation, when a vaccine is available for them.
Figure 2: The New York Times reports state-by-state vaccination eligibility
As clinicians, we can guide our patients, and their loved ones, to receive the vaccine, and answer any questions they may have. We can model, by receiving the vaccine ourselves, or point out public figures that they may look up to, who have received the vaccine. We can provide our patients with data, which they may normally not have access to. We have the unique opportunity to connect with our patients based on the level of trust we develop with them; we can build on this relationship by acknowledging and talking with them about vaccine hesitancy.
"We have the unique opportunity to connect with our patients based on the level of trust we develop with them; we can build on this relationship by acknowledging and talking with them about vaccine hesitancy."
How to Have the Conversation
In an effort to help clinicians with these conversations, my team at VitalTalk developed a conversation guide, which was adapted from motivational interviewing and research on vaccine hesitancy. The approach outlined in the guide gives clinicians the opportunity to engage with patients on a 1-on-1 level, as people, so that their individual concerns have space to be said out loud, and talked over.
The guide is an evidence-based roadmap for a sometimes-tricky conversation with patients—and their family members or other people who matter to them. It is meant for you as a clinician to reference – before having a vaccine conversation. Here’s how we recommend having the conversation, with more detail in the guide itself:
1) Start with Open-Ended Questions
When meeting with your patient, do not assume vaccine acceptance—instead, a soft start into a controversial topic may enable engagement. See below for an example:
Patient says: I’ve been hearing a lot about the COVID vaccine. What are your thoughts about it?
Clinician says: What have you been hearing? I’d be interested in how you see the positives and negatives with the vaccine. (Read more.)
2) Acknowledge Patient Concerns without Judging
Displaying empathy reduces the perception that you approve or disapprove of someone. It’s important to acknowledge a patient’s concern without showing judgement. An example of this dialogue is included below:
Patient says: I just don’t trust vaccines.
Clinician says: I have heard other people say they are worried about the vaccine. Could you say more about your concern? (Read more.)
3) Avoid Criticizing the Patient’s Information Sources
Instead of showing skepticism or criticizing what the patient is telling you, cite your experience and/or point the patient to high-quality sources they may be more likely to trust, from a positive frame. This reinforces the principle of not arguing against misinformation, but instead, providing high-quality information from a positive frame. Here’s an example of this in action:
Patient says: You just never know what the side effects will be.
Clinician says: Yes, it is true that there have been some side effects. The most common side effect is some soreness at the injection site […] (Read the rest of this response and other examples.)
4) Show Awareness of Your Status as a Messenger
This is especially important for people of color and members of other underserved groups. This recommendation reinforces that as a clinician, who you are as a messenger matters. And the quality of your prior interactions with that patient contribute to your authenticity and trustworthiness. During your conversation, you can talk about how you and your patient have made other important medical decisions, and you can cite stories (without identifying data) about other patients like them. For instance:
Patient says: I am not sure that the needs of my people have been taken into account.
Clinician says: I realize that the medical system in the United States has not treated everyone fairly in the past, and that it has been racist. I recognize the injustices that have happened in the past and are still happening now. The COVID vaccine was tested in thousands of people, about 10% of whom are people of color. There were no differences in side effects and the benefit—a 95% reduction in risk of serious infection or death from COVID was the same in all racial groups. We are handling the COVID vaccine better […] (Read the rest of this response and other examples.)
5) Link Vaccine Acceptance to the Patient’s Hopes and Goals
As palliative care clinicians, we regularly discuss goals with patients and families. Let this tip be part of that picture, as it may show how the vaccine is a stepping stone towards a future the patient wants – staying as healthy as possible – ultimately motivating them, or moving them toward acceptance.
Patient says: I’m just going to wait.
Clinician says: Of course, this is your decision. I do think that the vaccine will reduce your chances of getting a bad case of COVID and it is a step back towards normal – a social life with fewer restrictions […] (Read the rest of this response and other examples.)
This guide is meant to help respond to patient concerns, but does not include the standard back-and-forth that good communication requires. Please keep in mind that when patients are reticent to voice their concerns, it is better to suggest a topic and ask permission to talk about it and explain what you know, vs. lecture.
Keep in mind that the earlier-mentioned research on vaccine hesitancy shows that people holding extreme negative views on vaccines are unlikely to be swayed. Thus the approach outlined in the guide is designed to address people who are indeterminate, unsure, or are in the process of deciding about their feelings regarding vaccines. For this group, openness, empathy, and the offering of information after they give permission or show interest can enhance trust and your credibility as a messenger.