CAPC COVID-19 Response Resources

All toolkit resources and online courses have been made publicly available.

View CAPC's COVID-19 FAQ here.

CAPC wants to know how your team is responding to COVID-19. Fill in the form to share policies, procedures, or technical assistance that your team has developed.

To connect with others in the field to share coping strategies, register for Virtual Office Hours.

What’s in the Toolkit

How to talk to patients and families about COVID-19.

COVID-Ready Communication Skills: A VitalTalk Open Source Primer

Last Updated: March 20, 2020

Practical advice on how talk about difficult topics related to COVID-19, including specific phrasing for patient and family conversations.

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Proactive Call to Patients with COVID About Receiving Care At Home

Last Updated: March 27, 2020

Conversation map with specific phrases to use when talking to patients with COVID about whether they prefer to receive home care if their illness becomes severe. Developed by VitalTalk.

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Proactive Outreach to Patients with COVID at Home: Video Example

Last Updated: March 27, 2020

Training video for clinicians responding to COVID-19. Created by VitalTalk.

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COVID Goals of Care: Conversation Script

Last Updated: March 30, 2020

Conversation map with specific phrases to use when talking to patients who have COVID-19 about their goals of care. Developed by VitalTalk.

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COVID Goals of Care Conversation: Video Example

Last Updated: March 30, 2020

Training video for clinicians responding to COVID-19. Created by VitalTalk.

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Vent Withdrawal: Shared-Decision-Making Conversation Script

Last Updated: April 1, 2020

Conversation map with specific phrases to use when talking to families whose loved ones are dying despite critical care support. Developed by VitalTalk. Note: All clinicians should check with their institution’s legal counsel to ensure compliance with federal and state laws as well as institutional protocols.

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Vent Withdrawal: Conversation Script for Crisis/Triage Standards of Care

Last Updated: April 1, 2020

Conversation map with specific phrases to use when talking to families about removing their loved one from a ventilator in resource-scarce conditions. Developed by VitalTalk. Note: All clinicians should check with their institution’s legal counsel to ensure compliance with federal and state laws as well as institutional protocols.

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Vent Withdrawal Conversation: 2-Minute Video Example

Last Updated: March 30, 2020

Training video for clinicians responding to COVID-19. Created by VitalTalk.

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Saying Goodbye to Dying Family Member Over the Phone: Conversation Script

Last Updated: March 27, 2020

Conversation map with specific phrases to use when helping family members share last words over the phone. Developed by VitalTalk.

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Helping Families Say Goodbye Over the Phone: Video Example

Last Updated: March 30, 2020

Training video for clinicians responding to COVID-19. Created by VitalTalk.

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Graphic Adaptations of VitalTalk COVID Communication Guidance

Last Updated: March 27, 2020

Developed by Dr. Nathan Gray, Palliative Care Physician, Duke University School of Medicine.

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Respecting Choices: COVID-19 Conversation Resources

Last Updated: March 23, 2020

Care planning guides and decision aides for patients and families impacted by COVID-19.

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Honoring Previously Determined Preferences for Care

Last Updated: March 26, 2020

Pocket card with recommended questions to ask patients - both patients whose goals are consistent and those where goals have changed.

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Pediatrics: COVID-ready communication skills

Last Updated: April 3, 2020

Adapted from VitalTalk's guide to COVID-19 communication. Updated March 28, 2020.

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Palliative Communication Guide for Interpreters

Last Updated: March 25, 2020

Training tool for interpreters working with COVID or other seriously ill patients, including conversation frameworks and recommended phrases. Formatted for printing and sharing as pocket cards. Shared by the Mount Sinai Health System.

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Quick reference symptom management guides for clinicians in any specialty or setting.

Pocket Card: COVID Symptom Management and Key Communication Phrases

Last Updated: April 1, 2020

One-page front-and-back pocket card with dyspnea protocols, opioid quick tips, and specific communication phrases for responding to patient/family anxiety and discussing treatment options. Can be edited to include palliative care referral contact. Adapted from materials shared by Stanford Health.

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COVID-19 Response Training

Last Updated: March 20, 2020

Training for any clinician caring for patients in the context of COVID-19.

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Symptom Medications: COVID-19 Clinical Resource

Last Updated: March 23, 2020

Medications and starting doses for common symptoms. Updated 3/19/20.

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Stepwise Protocols for Crisis Symptom Management

Last Updated: March 20, 2020

Practical guidance to be shared with all clinicians to ensure patient symptoms are managed.

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Medication Chart: Managing Symptoms in the Home

Last Updated: March 31, 2020

Medication recommendations in liquid, tablet, or suppository formulations, including dosing and prescription quantities.

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Prescribing Opioids: A Pocket Reference

Last Updated: March 17, 2020

Opioid pocket reference for providers including safe starting doses, equianalgesic chart, and standard dosing strengths. Center to Advance Palliative Care, 2019.

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Drug Classes and Medications for Treatment of Nausea and Vomiting

Last Updated: March 17, 2020

Mechanisms, indications, and side effects for commonly used entiemetic medications.

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Symptom Management

Last Updated: March 19, 2020

Training curriculum and clinical tools for assessing and managing five common symptoms in patients living with serious illness.

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Palliative Care Referral Criteria: COVID-19 Context

Last Updated: March 23, 2020

When to refer patients with COVID-19 or pre-existing serious illnesses for specialty palliative care.

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Operational guidance to help teams address high levels of volume and stress during a crisis.

Team Health and Resiliency During the COVID-19 Pandemic

Last Updated: April 2, 2020

Nine practical, specific strategies for supporting team health during the COVID-19 pandemic.

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Specialty Palliative Care: COVID Crisis Service Design

Last Updated: April 1, 2020

Flowchart with service recommendations by setting and patient/clinician need, and tools for palliative care teams to provide support to colleagues across the organization. Note: All clinicians should check with their institution’s legal counsel to ensure compliance with federal and state laws as well as institutional protocols.

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Palliative Care Referral Criteria: COVID-19 Context

Last Updated: March 23, 2020

When to refer patients with COVID-19 or pre-existing serious illnesses for specialty palliative care.

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Readiness Protocol for Palliative Care Teams

Last Updated: April 2, 2020

Steps to prepare for COVID-19, including team deployment, telehealth setup, and considerations by care setting.

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FAQs About COVID-19 and Palliative Care

Last Updated: April 2, 2020

CAPC answers frequently asked questions from palliative care teams during the COVID-19 pandemic.

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Sample Palliative Care Consult Guidance (COVID-19)

Last Updated: March 24, 2020

Sample handout for front line clinicians with phone number and criteria for palliative care tele-consult. Shared by the Mount Sinai Health System.

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Right Person, Right Time: Using the IDT During Crisis

Last Updated: March 26, 2020

Three steps for making the best use of the IDT, and sample roles for social workers, chaplains, pharmacists and administrators.

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Billing Telehealth Visits with Patients in the Hospital

Last Updated: March 31, 2020

Sample reference sheet provided to palliative care teams on how to bill for patient visits in the hospital that are not conducted face-to-face.

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Completing POLST Forms in Crisis Standards of Care

Last Updated: April 3, 2020

Using the National POLST to reflect patient preferences during the COVID crisis. www.POLST.org.

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Managing Workload and Referrals During Peak or Crisis Periods

Last Updated: March 23, 2020

Proactive strategies for palliative care teams to work with referring partners to respond to COVID-19.

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Sample Decision Tree: Palliative Care Service Delivery in COVID-19

Last Updated: April 3, 2020

In-person and telephone palliative care triage guidelines for all care settings. Shared by the Palo Alto Medical Foundation/Sutter Health, March 16, 2020.

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UW Medicine COVID-19 Resource Site

Last Updated: March 20, 2020

Public policies, protocols, and flow diagrams developed at the University of Washington in response to the COVID-19 epidemic.

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Patient Care Strategies for Scarce Resource Situations

Last Updated: March 17, 2020

Minnesota Department of Health guidance including staffing, medication administration, and other clinical care issues impacted by resource-scarce conditions of crisis.

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National Coalition for Hospice and Palliative Care: COVID-19 Resources for the Field

Last Updated: March 17, 2020

One-stop shop for all resources offered by palliative care and hospice professional organizations.

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Ethical Framework for Health Care Institutions Responding to Novel Coronavirus SARS-CoV-2 (COVID-19)

Last Updated: March 18, 2020

Guidelines from The Hastings Center for Institutional Ethics Services Responding to COVID-19: Managing Uncertainty, Safeguarding Communities, Guiding Practice. March 16, 2020.

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Palliative Care Twitter Feed on COVID-19

Last Updated: March 17, 2020

Field hashtag for support, ideas, and inspiration in the midst of the COVID-19 crisis.

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Tools to facilitate telehealth and telemedicine setup, operations, billing, and virtual visit etiquette.

Telehealth At-A-Glance Guidance

Last Updated: April 1, 2020

Palliative care use cases, team considerations, and tips for virtual visit etiquette. Updated March 31, 2020.

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A virtual visit algorithm: How to differentiate and code telehealth visits, e-visits, and virtual check-ins

Last Updated: March 25, 2020

Ready-to-use algorithm from a March 23, 2020 article in the AAFP's Family Practice Medicine blog.

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Telehealth Start-Up Guide

Last Updated: March 17, 2020

Key components of telehealth service delivery, especially in a home-based palliative care program.

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Telemedicine: Virtual Connection in an Age of Social Distancing

Last Updated: March 25, 2020

Dr. Michael Fratkin makes the case for telemedicine and provides tips for the best possible interaction during the COVID-19 pandemic.

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Virtually Perfect? Telemedicine for COVID-19

Last Updated: March 18, 2020

March 11, 2020, New England Journal of Medicine.

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Telehealth Visit Outline

Last Updated: March 17, 2020

Protocols for first telehealth visits with patients and families. REACH PC, 2020.

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CMS General Provider Telehealth and Telemedicine Tool Kit

Last Updated: March 22, 2020

3/20/20 telehealth and telemedicine guidance from the Centers for Medicare and Medicaid Services (CMS).

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Most recent communications about COVID-19 waivers and emergency policy measures.

How to Use: Temporary Medicare Waivers under COVID-19 Emergency

Last Updated: March 31, 2020

CAPC summary of COVID-19 waiver implications for palliative care teams. Updated March 27, 2020.

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State COVID Policy Tracker for Palliative Care Teams

Last Updated: March 24, 2020

Continuously updated reference on emergency state policy responses to COVID-19.

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Medicare Advantage: COVID Plan Waivers and Added Services

Last Updated: April 2, 2020

Waivers and additional services that major MA carriers have put in place, as of 3/31/2020.

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Hospice Flexibility Under the COVID-19 Emergency

Last Updated: April 2, 2020

Overview of regulatory changes pertaining to telehealth, workforce requirements, paperwork relief, and hospice payments. Updated April 1.

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Temporary Waivers and Rules Relaxation: CMS Overview

Last Updated: April 1, 2020

Graphic from the Centers for Medicare and Medicaid Services (CMS) on rule changes allowing for more flexible response to COVID-19.

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Centers for Medicare and Medicaid Services (CMS) COVID-19 Waiver Guidance

Last Updated: April 3, 2020

CMS info on COVID-19 waivers and emergency measures.

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Information and recommendations written for patients and families by the CDC and other trusted organizations.

Planning Steps for Patients & Families During the COVID-19 Crisis

Last Updated: April 2, 2020

Tip sheet to share with families so they can plan ahead in the event they become ill, and make their care wishes known. Adapted by the National Patient Advocate Foundation from the PREPARE For Your Care program.

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CDC Coronavirus (COVID-19) Homepage

Last Updated: March 17, 2020

First line information from the CDC for patients and families.

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How to Protect Yourself: CDC Guidance

Last Updated: March 17, 2020

Information for patients and families about how to avoid acquiring or spreading COVID-19.

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If You Are at Higher Risk: CDC Guidance

Last Updated: March 17, 2020

Information that specifically applies to patients with serious illness and their families.

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What To Do If You Are Sick: CDC Guidance

Last Updated: March 17, 2020

Information for patients and families who have COVID-19 or symptoms that may indicate COVID-19.

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National Patient Advocate Foundation: 'COVID-19 Center'

Last Updated: March 24, 2020

Information about how NPAF is working on behalf of patients and families impacted by COVID-19.

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Get Palliative Care

Last Updated: January 29, 2019

Information for patients and families about palliative care.

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Information and updates from US federal agencies.

DEA Diversion Control Division: Controlled Substances

Last Updated: March 17, 2020

DEA updates about controlled substances supply and prescribing guidance.

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Coronavirus (COVID-19) Partner Toolkit

Last Updated: March 17, 2020

CMS.gov compilation of clinician, patient, and family resources.

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CMS Announces Relief for Clinicians, Providers, Hospitals and Facilities Participating in Quality Reporting Programs in Response to COVID-19

Last Updated: March 22, 2020

Exceptions and exemptions from Medicare quality reporting programs.

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Guidance for patients with specific underlying serious illnesses.

American Society of Clinical Oncology (ASCO) COVID-19 Patient Care Information

Last Updated: March 24, 2020

FAQs and cancer-specific data compiled by ASCO.

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Managing Cancer Care During the COVID-19 Pandemic: Agility and Collaboration Toward a Common Goal

Last Updated: April 1, 2020

March 20 Special Feature from the Journal of the National Comprehensive Cancer Network (JNCCN).

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Responding to hard questions and emotional distress about COVID-19 from dialysis patients or their families

Last Updated: March 24, 2020

Guidance from the Pathways Project the The George Washington University and the Coalition for Supportive Care of Kidney Patients.

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Curated resources and information by care setting.

Home Care and Hospice Checklist for COVID-19

Last Updated: March 26, 2020

Resource published by the National Association for Home Care & Hospice (NAHC) on March 20, 2020.

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Guidance for Hospice Providers: COVID-19

Last Updated: March 18, 2020

Resources from CMS and other sources curated by the National Hospice and Palliative Care Organization (NHPCO).

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Guidance for Nursing Homes: COVID-19

Last Updated: March 18, 2020

Resources from AMDA.

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Guidance for Home-Based Care: COVID-19

Last Updated: March 18, 2020

Resources from the Centers for Disease Control.

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Guidance for Home-Based Care: COVID-19

Last Updated: March 18, 2020

Resources from the American Academy of Home Care Medicine.

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Position statements on the palliative care field's role responding to national emergencies.

CAPC Key Messages re: COVID-19

Last Updated: March 24, 2020

Messages and supporting points that palliative care professionals can use with the public and press to explain the role of palliative care in COVID-19.

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Shortfall Of Comfort Care Signals Undue Suffering For Coronavirus Patients

Last Updated: March 26, 2020

Kaiser Health News, March 26, 2020.

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Palliative Care in the Time of COVID: Graphic Stories

Last Updated: March 21, 2020

“As we take stock of masks, gloves, and ventilators, we must also be ready to dig deep into our reserves of patience, communication, and compassion.” Nathan A. Gray, MD.

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Navigating the Impact of COVID-19 in Palliative Care

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Communicating with Patients and Families during COVID-19

Monday, April 6 at 10 a.m. ET
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Moving to Telehealth from an Office or Clinic-Based Setting

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Palliative Care Teams Navigating COVID-19: Lessons from the Frontlines

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