Updates: CAPC COVID-19 Response Resources toolkit

Updated May 22, 2020 | By CAPC Staff

Updated tools and resources in the CAPC COVID-19 Response Resources toolkit.

May 22, 2020

Palliative Care Team Tools

  • New: Fast Five: Leadership Tips to be Prepared for a Stressful Budget Season in the COVID-19 Era
    CAPC consultant Lynn Spragens, MBA, shares four tips for proactively approaching what will likely be a complicated year of staffing and budget planning as healthcare organizations and practices grapple with the impacts of COVID-19. 5-minute video.
    View

  • New: Resources on Telechaplaincy
    Information from the Chaplaincy Innovation Lab on planning, staffing, and delivering telechaplaincy services.
    View

Using Telehealth

  • Updated: Telehealth At-A-Glance Guidance
    Palliative care use cases, team considerations, and tips for virtual visit etiquette. Updated May 12, 2020.
    Download

  • Updated: Medicare Telehealth Billing During COVID-19
    Under the COVID-19 Public Health Emergency, the Center for Medicare and Medicaid Services (CMS) is allowing Medicare billing for telehealth and telephone encounters. This document is a summary of CMS guidance. Updated May 12, 2020.
    Download

Resilience

  • New: The 3 Good Things: Web App for Journaling Gratitude
    Easy-to-use website for journaling gratitude each day - an evidence-based technique to improve mood and promote resiliency. Developed by CrossComm in collaboration with Dr. Arif Kamal and the Quality in Cancer Research Program at the Duke Cancer Institute.
    View

Role of Palliative Care

  • New: A Beacon for Dark Times: Palliative Care Support During the Coronavirus Pandemic
    May 12, 2020 NEJM Catalyst article on how the Icahn School of Medicine at Mount Sinai palliative care team developed and operationalized a 24/7 palliative care hotline to support their health system's COVID-19 response.
    Download

May 12, 2020

Symptom Management Protocols

  • New: Outpatient Opioid Prescribing During COVID-19
    Allowable telehealth practices for opioid prescribing from the DEA under COVID-19.
    View

Palliative Care Team Tools

  • New: Fast Five: All In – Using the Full Interdisciplinary Team (IDT) During a Crisis
    5-minute video with strategies for using all members of the IDT during the COVID-19 crisis, drawing from interviews with programs across the country. Speaker: Constance Dahlin, MSN, ANC-BC, ACHPN, Consultant to the Center to Advance Palliative Care.
    View

  • New: ELNEC Support for Nurses During COVID-19
    Resources from the End-of-Life Nursing Education Consortium (ELNEC) including self-care strategies, nursing communication in a pandemic, and end-of-life care.
    View

Resilience

  • New: Resources for Health Care Worker Well-Being and Resiliency
    Curated tools and handouts from leading organizations that promote health care worker well-being and resiliency.
    View

  • New: Resources for Health Care Workers Experiencing Grief
    Curated list of resources for health care workers coping with grief during COVID-19.
    View

Patient and Family Support Resources

  • New: COVID-19 Fact Check (Translated in 7 Languages)
    Easy to use 'myth-buster' site for patients and families with practical facts and information about COVID-19. Information is sourced from the WHO, CDC, and other credible sources by an independent group of medical students at UCSF.
    View

Specific Patient Populations

  • Updated: COVID-19 Resources for Specific Patient Populations
    Information and helpful links for patients and families regarding COVID-19 in the context of specific underlying diseases.
    View

May 6, 2020

Communication Scripts and Conversation Videos

  • New: Eliciting Patient Priorities via Telehealth
    Conversation guide and trouble-shooting tips using Patient Priorities Care (PPC) model. This tool aligns with the Institute for Healthcare Improvement’s Age-Friendly Health System approach.
    Download

  • New: Respecting Choices: COVID-19 Conversation Resources
    Care planning guides and decision aides for patients and families impacted by COVID-19.
    View

Palliative Care Team Tools

  • New: Responding to Covid-19 as a Regional Public Health Challenge: Preliminary Guidelines for Regional Collaboration Involving Hospitals
    Highlights potential ethical concerns for a regional public health COVID-19 response, and provides guidance on supporting collaboration across institutions throughout pandemic response and recovery.
    View

Using Telehealth

  • Updated: Medicare Telehealth Billing During COVID-19
    Under the COVID-19 Public Health Emergency, the Center for Medicare and Medicaid Services (CMS) is allowing Medicare billing for telehealth and telephone encounters. This document is a summary of CMS guidance. Updated April 30, 2020.
    Download

Resilience

  • New: Caring for Yourself & Others During the COVID-19 Pandemic: Managing Healthcare Workers’ Stress
    March 24, 2020 webinar presented by Patricia Watson, PhD, of the National Center for PTSD.
    View

Medicare and Medicaid COVID-19 Waivers + State Policy COVID Tracker

  • Updated: How to Use: Temporary Medicare Waivers under COVID-19 Emergency
    CAPC summary of COVID-19 waiver implications for palliative care teams. Updated May 1, 2020.
    Download

Voices from the Front Line

  • New: Knox Community Hospital Profile: Palliative Care COVID Response
    Case study of the Knox Community Hospital palliative care program's COVID response strategy. Mount Vernon, OH.
    Download

May 1, 2020

Palliative Care Team Tools

  • New: Demonstrating Palliative Care Value: During and After the COVID-19 Crisis
    Ways to ensure that palliative care expertise is well-utilized and highly valued in the context of COVID-19.
    View

Resilience

  • New: COVID Coach App: iPhone/iPad
    App for coping with stress during COVID with self-assessments, exercises, and helpful readings. Published by the US Department of Veterans Affairs (VA).
    View

  • New: COVID Coach App: Android
    App for coping with stress during COVID with self-assessments, exercises, and helpful readings. Published by the US Department of Veterans Affairs (VA).
    View

Setting-Specific Guidance

  • Updated: Setting-Specific Guidance for COVID-19
    Curated COVID-19 resources for home care, long-term care, and hospice.
    View

April 30, 2020

Communication Scripts and Conversation Videos

  • New: "Fast Five": Legal Issues in Advance Care Planning During COVID-19
    5-minute CAPC video with practical tips for advance care planning documentation, signatures, notarization, and witnesses when in-person signatures are limited. Speaker: Charlie Sabatino, Director of the American Bar Association’s Commission on Law and Aging.
    View

  • New: Communication Skills for Bridging Inequality During the COVID Pandemic
    A new addition to the COVID-Ready Communication Playbook by VitalTalk.
    Download

Resilience

  • New: Understanding Distress in the COVID-19 Pandemic
    Explores common sources of distress for palliative care professionals, and how to proactively respond to feelings distress.
    Download

Medicare and Medicaid COVID-19 Waivers + State Policy COVID Tracker

  • Updated: How to Use: Temporary Medicare Waivers under COVID-19 Emergency
    CAPC summary of COVID-19 waiver implications for palliative care teams.
    Download

Patient and Family Support Resources

  • New: Legacy Poetry Template: English
    Art therapy initiative developed by teams at Mount Sinai Health System in New York City to help patients and families find meaning and create legacy.
    Download

  • New: Legacy Poetry Template: Spanish
    Art therapy initiative developed by teams at Mount Sinai Health System in New York City to help patients and families find meaning and create legacy.
    Download

Federal COVID-19 Guidance

  • New: CDC Training for Health Professionals
    Education and training from the CDC on emergency preparedness, infection control, COVID-19 clinical care, non-pharmaceutical interventions, and PPE.
    View

April 27, 2020

Symptom Management Protocols

  • New: Comfort Pack Info Sheet for Patients: Sample
    Example reference sheet for patients on how and when to use in-home comfort pack medications to manage symptoms.
    Download

Setting-Specific Guidance

  • New: Setting-Specific Guidance for COVID-19
    Curated COVID-19 resources for home care, long-term care, and hospice.
    View

April 24, 2020

Palliative Care Team Tools

  • New: Planning Beyond a Crisis: Steps for Finding Your Palliative Care Team’s "New Normal"
    Four steps palliative care programs can follow as they plan forward beyond the COVID-19 crisis.
    View

  • New: Discipline-Specific COVID-19 Resources
    A list of COVID-19 resources for specific disciplines, including nurses, social workers, and chaplains.
    View

Using Telehealth

  • New: Medicare Telehealth Billing During COVID-19
    Under the COVID-19 Public Health Emergency, the Center for Medicare and Medicaid Services (CMS) is allowing Medicare billing for telehealth and telephone encounters. This document is a summary of CMS guidance.
    Download

April 22, 2020

  • New: COVID-19 Learning Pathways
    Seven new learning pathways which include clinical training courses, just-in-time tools, and technical assistance for clinicians caring for patients in the context of COVID-19.
    View

April 20, 2020

Resilience

  • New: Decompress
    A daily podcast from Tony Back, MD, co-founder of VitalTalk, about what health care professionals can do to sustain themselves.
    View

April 17, 2020

Voices from the Front Line

  • New: Baylor Scott White Health Care Profile: Palliative Care COVID Response
    Case study of the Baylor Scott White Health Care palliative care program's COVID response strategy.
    Download

  • New: Duke Health Profile: Palliative Care COVID Response
    Case study of the Duke Health palliative care program's COVID response strategy.
    Download

Palliative Care Team Tools

  • New: Palliative Care COVID-19 Note Template
    Sample palliative care COVID-19 note template for an EHR. Developed by the Mount Sinai Health System.
    Download

April 15, 2020

Palliative Care Team Tools

  • New: Palliative Care Team and Individual Stress Mitigation Strategies
    Short list of strategies that palliative care teams and individuals can implement to reduce the long-term impact of stress related to the COVID-19 pandemic.
    View

  • New: Role of Palliative Care Teams in Dedicated COVID-19 Sites
    Guidance for palliative care teams being asked to support or respond to dedicated COVID-19 units.
    Download

  • Updated: Preparing for COVID-19: Readiness Protocol for Palliative Care Teams
    Steps to prepare for COVID-19, including team deployment, telehealth setup, and considerations by care setting.
    Download

Voices from the Front Line

  • New: Lehigh Valley Health Network Profile: Palliative Care COVID Response
    Case study of the Lehigh Valley Health Network palliative care program's COVID response strategy.
    Download

  • New: Mount Sinai Hospital Profile: Palliative Care COVID Response
    Case study of the The Mount Sinai Hospital palliative care program's COVID-19 response strategy.
    Download

Patient and Family Support Resources

  • New: Being Prepared in the Time of COVID-19: Three Things You Can Do Now
    Three important things people can do to be prepared should they become seriously ill with COVID-19, from Ariadne Labs and The Conversation Project.
    View

Specific Patient Populations

  • New: COVID-19 Resources for Specific Patient Populations
    Information and helpful links for patients and families regarding COVID-19 in the context of specific underlying diseases.
    View

April 13, 2020

Symptom Management Protocols

  • New: Symptom Management Support for COVID-19 in the Nursing Home
    Medication guidelines for managing shortness of breath, pain, constipation, anxiety or agitation, nausea/vomiting, secretions, and diarrhea in a long-term care setting.
    Download

Palliative Care Team Tools

  • New: Equitable Palliative Care Access in COVID-19
    Tips for addressing the impact of historically inequitable access to palliative care service in your organization's COVID response strategy.
    Download

  • New: Sample Policy: Personal Protective Equipment (PPE) Practices
    Sample policy and visual reference guide for Personal Protective Equipment developed by Mount Sinai Health System in New York, NY.
    Download

Voices from the Front Line

  • New: Medical University of South Carolina Profile: Palliative Care COVID Response
    Case study of the MUSC palliative care program's COVID response strategy.
    Download

Setting-Specific Guidance

  • New: Hospice and Home Care COVID-19 Crisis Planning Checklist
    List of considerations and key resources for planning the organization's response to COVID, including communication, workforce, PPE, technology, and care delivery.
    Download

April 9, 2020

Communication Scripts and Conversation Videos

  • New: Basic Advance Care Planning Scripts for All Outpatient Healthcare Professionals
    Appropriate regardless of discipline or training - no experience necessary. Developed by PREPARE For Your Care for the COVID-19 crisis.
    Download

  • New: Serious Illness Care Program COVID-19 Response Toolkit
    Conversation guide, telehealth communication tips, recommendation aid, and care planning resources.
    View

  • New: Best Case/Worst Case: ICU Conversations for COVID-19
    Toolkit for navigating conversations with patients’ families to inform critical care clinicians about the lives of the patients they are caring for and support families who are absent from the patient’s bedside and isolated at home. Shared by HIPxChange.
    View

Palliative Care Team Tools

  • New: Leading Through a Crisis: COVID Leadership Tips from the Field
    Tips from palliative care teams about four important actions leaders can take to stabilize teams and maintain quality care through a crisis.
    Download

Voices from the Front Line

  • New: Northwell Health Profile: Palliative Care COVID Response
    Case study of the Northwell palliative care program's COVID response strategy.
    Download

  • New: Northwestern Profile: Palliative Care COVID Response
    Case study of the Northwestern palliative care program's COVID response strategy.
    Download

  • New: Penn Medicine Profile: Palliative Care COVID Response
    Case study of the Penn Medicine palliative care program's COVID response strategy.
    Download

Specific Patient Populations

  • New: American Academy of Pediatrics (AAP): Critical Updates on COVID-19
    Clinical guidance, practice management resources, discussion board, information for families, and other pediatric resources specific to COVID-19.
    View

Setting-Specific Guidance

  • New: Advance Care Planning During a Crisis: Key Information for Nursing Facility Staff
    Created by Susan Hickman, PhD, and Kathleen Unroe, MD, MHA, from the Indiana University Center for Aging Research, Regenstrief Institute.
    View

April 7, 2020

Communication Scripts and Conversation Videos

  • New: POLST Conversations for ED Physicians with a Capable Patient
    5-minute video demonstrating a physician using the VitalTalk method to talk with a capable patient about her wishes for care and treatment. Created by Dr. Katie Stowers, the Ronald W. Naito Director in Serious Illness Education and co-chair of the Oregon POLST Coalition Education Committee.
    View

  • New: POLST Conversations for ED Physicians with a Surrogate
    5-minute video on how to communicate compassionately with a surrogate representing a patient who no longer has capacity to speak about their health care goals and wishes. Uses VitalTalk communication methods. Created by Dr. Katie Stowers, the Ronald W. Naito Director in Serious Illness Education and co-chair of the Oregon POLST Coalition Education Committee.
    View

Palliative Care Team Tools

  • New: Reporting Registry: The PCQC–COVID19 Case Report
    Short case report form hosted by the Palliative Care Quality Collaborative to collate experiences of palliative care clinicians in caring for COVID-19 positive, PUI (Person Under Investigation), and recovered patients. These experiences will be shared with the palliative care community to foster clarity in the field through continuous learning.
    View

  • New: Sequence for Putting On Personal Protective Equipment (PPE)
    Guidance and diagrams from the CDC on gloves, goggles, masks, and gowns.
    Download

  • Updated: Readiness Protocol for Palliative Care Teams
    Steps to prepare for COVID-19, including team deployment, telehealth setup, and considerations by care setting.
    Download

Voices from the Front Line

  • New: University of Washington Profile: Palliative Care COVID Response
    Case study of the University of Washington palliative care program's COVID response strategy.
    Download

  • New: Ochsner Health Profile: Palliative Care COVID Response
    Case study of the Ochsner Health palliative care program's COVID response strategy.
    Download

  • New: Hackensack Meridian Health Profile: Palliative Care COVID Response
    Case study of the Hackensack Meridian Health palliative care program's COVID response strategy.
    Download

  • New: UCSF Profile: Palliative Care COVID Response
    Case study of the University of California San Francisco palliative care program's COVID response strategy.
    Download

Patient and Family Support Resources

  • New: COVID-19: What It Is, and Ways to Prepare and Protect Yourself and Others
    12-minute webinar published on April 2 by the Indiana University Center for Aging Research, Regenstrief Institute.
    View

Setting-Specific Guidance

  • New: Advance Care Planning During a Crisis: Key Information for Nursing Facility Staff
    12-minute webinar published on April 2 by the Indiana University Center for Aging Research, Regenstrief Institute.
    View

Medicare and Medicaid COVID-19 Waivers + State Policy COVID Tracker

  • New: Centers for Medicare and Medicaid Services (CMS) COVID-19 Waiver Guidance
    CMS info on COVID-19 waivers and emergency measures.
    View

  • Updated: How to Use: Temporary Medicare Waivers under COVID-19 Emergency
    CAPC summary of COVID-19 waiver implications for palliative care teams.
    Download

April 3, 2020

Communication Scripts and Conversation Videos

  • New: Pediatrics: COVID-Ready Communication Skills
    Adapted from VitalTalk's guide to COVID-19 communication.
    Download

Palliative Care Team Tools

  • New: Team Health and Resiliency During the COVID-19 Pandemic
    Nine practical, specific strategies for supporting team health during the COVID-19 pandemic.
    Download

  • New: Setting Up a Palliative Care Hotline for Your Hospital or System
    Covers hotline service design, staffing and workflow, and considerations if incorporating external palliative care clinicians to staff the hotline.
    Download

  • New: Leading Through a Crisis: Quick References
    Annotated guide to four helpful articles on leadership in the time of the COVID-19 crisis.
    Download

  • New: Completing POLST Forms in Crisis Standards of Care
    Using the National POLST to reflect patient preferences during the COVID crisis. www.POLST.org.
    Download

  • New: American Nurses Association: Crisis Standards of Care
    Guidance to registered nurses on dealing with the tension between time-limited crisis standards of care and longstanding professional care standards.
    Download

Using Telehealth

  • New: Epic Note Template: Telemedicine (Video) Palliative Care Assessment
    Sample note for palliative care teams performing telemedicine assessments. Shared by Presbyterian Healthcare Services.
    Download

Patient and Family Support Resources

  • New: Caregiving During COVID: Three Good Things To Do
    VitalTalk co-founder Dr. Tony Back speaking to caregivers about how they can be prepared in the event that they or their loved one becomes ill. This video is a companion to the 'Planning Steps' guide for families listed above.
    View

April 2, 2020

Communication Scripts and Conversation Videos

  • New: Vent Withdrawal: Shared-Decision-Making Conversation Script
    Conversation map with specific phrases to use when talking to families whose loved ones are dying despite critical care support. Developed by VitalTalk. Note: All clinicians should check with their institution’s legal counsel to ensure compliance with federal and state laws as well as institutional protocols.
    Download

Symptom Management Protocols

  • New: Pocket Card: COVID-19 Symptom Management and Key Communication Phrases
    One-page front-and-back pocket card with dyspnea protocols, opioid quick tips, and specific communication phrases for responding to patient/family anxiety and discussing treatment options. Can be edited to include palliative care referral contact. Adapted from materials shared by Stanford Health.
    Download

Palliative Care Team Tools

  • New: FAQs About COVID-19 and Palliative Care
    CAPC is listening to your concerns and challenges around the COVID-19 pandemic, and we’re here to help. Here are answers to some frequently asked questions.
    View

  • Updated: Readiness Protocol for Palliative Care Teams
    Steps to prepare for COVID-19, including team deployment, telehealth setup, and considerations by care setting.
    Download

Using Telehealth

  • Updated: Telehealth At-A-Glance Guidance
    Palliative care use cases, team considerations, and tips for virtual visit etiquette.
    Download

Medicare and Medicaid COVID-19 Waivers + State Policy COVID Tracker

  • New: Temporary Waivers and Rules Relaxation: CMS Overview
    Graphic from the Centers for Medicare and Medicaid Services (CMS) on rule changes allowing for more flexible response to COVID-19.
    Download

  • New: Hospice Flexibility Under the COVID-19 Emergency
    Overview of regulatory changes pertaining to telehealth, workforce requirements, paperwork relief, and hospice payments.
    Download

  • New: Temporary Waivers and Rules Relaxation: CMS Overview
    Graphic from the Centers for Medicare and Medicaid Services (CMS) on rule changes allowing for more flexible response to COVID-19.
    Download

  • New: Medicare Advantage: COVID Plan Waivers and Added Services
    Waivers and additional services that major MA carriers have put in place, as of 3/31/2020.
    Download

Patient and Family Support Resources

  • Updated: Planning Steps for Patients & Families During the COVID-19 Crisis
    Tip sheet to share with families so they can plan ahead in the event they become ill, and make their care wishes known. Adapted by the National Patient Advocate Foundation from the PREPARE For Your Care program. Updated to reflect new changes.
    Download

Specific Patient Populations

  • New: Managing Cancer Care During the COVID-19 Pandemic: Agility and Collaboration Toward a Common Goal
    March 20 Special Feature from the Journal of the National Comprehensive Cancer Network (JNCCN).
    Download

March 31, 2020

Communication Scripts and Conversation Videos

  • New: COVID-19 Goals of Care: Conversation Script
    Conversation map with specific phrases to use when talking to patients who have COVID-19 about their goals of care. Developed by VitalTalk.
    Download

  • New: COVID-19 Goals of Care Conversation: Video Example
    Training video for clinicians responding to COVID-19. Created by VitalTalk.
    View

Symptom Management Protocols

  • New: Medication Chart: Managing Symptoms in the Home
    Medication recommendations in liquid, tablet, or suppository formulations, including dosing and prescription quantities.
    Download

Using Telehealth

  • New: Billing Telehealth Visits with Patients in the Hospital
    Sample reference sheet provided to palliative care teams on how to bill for patient visits in the hospital that are not conducted face-to-face.
    Download

  • Updated: Telehealth At-A-Glance Guidance
    Palliative care use cases, team considerations, and tips for virtual visit etiquette. Updated to include allowable platforms.
    Download

Patient and Family Support Resources

  • New: Planning Steps for Patients & Families During the COVID-19 Crisis
    Tip sheet to share with families so they can plan ahead in the event they become ill, and make their care wishes known. Adapted by the National Patient Advocate Foundation from the PREPARE For Your Care program.
    Download

Medicare and Medicaid COVID-19 Waivers + State Policy COVID Tracker

  • Updated: How to Use: Temporary Medicare Waivers under COVID-19 Emergency
    CAPC summary of COVID-19 waiver implications for palliative care teams. Updated to reflect new changes.
    Download

  • Updated:State COVID-19 Policy Tracker for Palliative Care Teams
    Continuously updated reference on emergency state policy responses to COVID-19. Updated to include new scans.
    View
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