Dementia: Relieving Suffering for Patients and Families

Last Reviewed: January 31, 2017

What You’ll Learn

  1. Describe the prevalence and burden of dementia on patients, families, and the health care system
  2. Recognize and anticipate the disease trajectory of dementia and its impact on prognosis and treatment
  3. Identify and address the sources of suffering for patients and families dealing with dementia

What You’ll Earn

CAPC members can earn the following free continuing education credits:

Case Management: 1.00 CE
Licensed Professional Counselors: 1.00 CE
Medicine: 1.00 CME, 1.00 ABIM MOC
Nursing: 1.00 CNE
Social Work: 1.00 CE (NYSED)
Social Work: 1.00 CE (NASW)

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Tools & Resources

The Global Deterioration Scale (GDS)

Last Updated: January 29, 2019

Stages of cognitive function for those suffering from a degenerative dementia such as Alzheimer's disease.


FAST Scale

Last Updated: January 6, 2020

A functional scale designed to evaluate patients in the middle and late stages of dementia.


Assessment in Advanced Dementia Scale (PAINAD)

Last Updated: January 29, 2019

Tool to assess pain in cognitively impaired patients.


Fast Fact #84: Swallow Studies, Tube Feeding, and the Death Spiral

Last Updated: January 29, 2019

Approaches for addressing nutrition at the end of life


Music & Memory

Last Updated: January 29, 2019

MUSIC & MEMORY℠ is a non-profit organization that brings personalized music into the lives of the elderly or infirm through digital music technology, vastly improving quality of life.


Fact Sheet: G0505 Explanatory Guide for Clinicians

Last Updated: January 29, 2019

Guidance on billing for care planning services for individuals who are cognitively impaired. Alzheimer’s Association, 2017.


Fact Sheet: Care Planning for People with Cognitive Impairment

Last Updated: January 29, 2019

Key statistics, and guidance on care planning including using billing codes for services provided to cognitively impaired patients. Alzheimer’s Association, February 2017.


Course References: Dementia

Last Updated: January 29, 2019

Course citations. Center to Advance Palliative Care, 2018.

Drew Rosielle, MD, FAAHPM. Palliative Care, Fairview Health Services, University of Minnesota Medical School.

Lolita Melhado, MSN, ARNP, FNP-BC. Family Nurse Practitioner/Palliative Care, Gulf Coast Medical Center - Lee Memorial Health System.

Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.

Kathleen Unroe, MD, MHA. Assistant Professor of Medicine, Indiana University School of Medicine; Center Scientist, Indiana University Center for Aging Research; Investigator, Regenstrief Institute, Inc.

Cheryl Phillips, MD, AGSF, CMD. Senior VP Advocacy and Public Policy, LeadingAge.

Megan E. Rau, MD. Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai.

Contact information: For technical questions about online activity or continuing education credits, contact or 212-201-2674.

Provided by the Icahn School of Medicine at Mount Sinai.

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