Supporting the Caregivers of People Living with Dementia

Last Reviewed: March 4, 2019

What You’ll Learn

  1. Describe the population of dementia caregivers, their many responsibilities, and the impact of caregiving on the caregiver.
  2. Understand tools that providers can use to assess caregiver well-being and steps that they can take to ensure that caregivers’ needs are addressed.
  3. Describe the importance of providing referrals to community-based support services and understand how to locate local sources of respite care, support groups, caregiver education, safe return programs, and more.

This course was created with generous support from the nonprofit Gary and Mary West Health Institute.

What You’ll Earn

After completing the course, you’ll earn a Verification of Attendance certificate.

CAPC members can earn the following free continuing education credits:

Case Management: 1.00 CE
Licensed Professional Counselors: 1.00 CE
Medicine: 1.00 CME, 1.00 ABIM MOC
Nursing: 1.00 CNE
Social Work: 1.00 CE (NASW)
Social Work: 1.00 CE (NYSED)

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This course is open-to-all at no cost.


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Tools & Resources

Dementia Care Resources for Caregivers

Last Updated: March 21, 2019

Print or email this handout of caregiver resources for education and support.


Caring for the Caregiver

Last Updated: March 29, 2019

Validated tools for assessing caregiver health and well-being.


Referral to Community Resources

Last Updated: March 29, 2019

Community-based resource locators and support services.


Dementia Care Resources in Our Community

Last Updated: April 4, 2019

Fill out this worksheet with contact information for community-based services in your area, and supply to clinical staff or patients and families.


Family Caregiver Alliance

Last Updated: February 26, 2019

Resource locator, education, and support for caregivers, including disease-specific information.


Home Health Compare

Last Updated: February 26, 2019

Medicare locator of home health agencies.


Cognitive Impairment Care Planning

Last Updated: February 26, 2019

Guidance from the Alzheimer's Association on utilizing CPT code 99483.


Alzheimer's Association Referral Pads

Last Updated: February 26, 2019

Order free referral pads to easily connect caregivers and people living with dementia to the Alzheimer's Association.


REACH II Intervention Summary

Last Updated: February 26, 2019

Case study on Resources for Enhancing Alzheimer's Caregiver Health II (REACH II). National Registry of Evidence-based Programs and Practices, 2007.


CaringKind's Caregiver Storyteller Podcast

Last Updated: May 13, 2019

A storytelling podcast about Alzheimer's and dementia caregiving.


Course References: Supporting the Caregivers of People Living with Dementia

Last Updated: February 26, 2019

Course citations. Center to Advance Palliative Care, 2019.


Cindy Barton, MSN, GNP, BC. Nurse Practitioner, UCSF Memory and Aging Center.

Andrew E. Esch, MD, MBA. Consultant Center to Advance Palliative Care.

Stefanie Bonigut, LCSW. Family Services Manager. Alzheimer's Association of Northern California and Northern Nevada.

Jim Palmer, MSW, LCSW. Palliative Care Social Worker. Mount Sinai Hospital.

Marta Kazandijan, MA, CCC-SLP, BSC-S. Director, Division Speech Pathology and Swallowing. New York Presbyterian Queens and Silvercrest Center for Nursing and Rehabilitation.

Gina Decker. Caregiver.

Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care.

Melissa Bakar, MD. Integrated Fellow in Geriatrics and Palliative Medicine. Mount Sinai Hospital.

Karl B. Bezak, MD. Board Certified Internal Medicine, Hospice and Palliative Medicine Fellow

Nora Brennan, RN. Cardiology. University of Pennsylvania Hospital System.

Gail Gongaware, RN, BSN, CCM, MS. Education manager, Education and Training, VNSNY.

Kristin Chouinard, RN, CHPN. Gerontology. North Shore Elder Services, Partners Healthcare.

Philip Higgins, PhD, LICSW. President Lighthouse Counseling of Salem, Inc.

Contact information: For technical questions about online activity or continuing education credits, contact or 212-201-2674.

Provided by the Icahn School of Medicine at Mount Sinai.

The Courses

Discussing Your Patient’s Dementia Diagnosis

Disclosing a dementia diagnosis to patients and caregivers in a way that is sensitive, clear, and s…

Communicating About What to Expect as Dementia Progresses

Helping patients and caregivers understand challenges they may face as dementia worsens.

Planning for the Future with People Living with Dementia and Their Caregivers

Enabling patients and caregivers to plan ahead for the financial, legal, and other impacts of demen…

View all courses in the unit