Supporting the Caregivers of People Living with Dementia

Last Reviewed: March 4, 2019

What You’ll Learn

  1. Describe the population of dementia caregivers, their many responsibilities, and the impact of caregiving on the caregiver.
  2. Understand tools that providers can use to assess caregiver well-being and steps that they can take to ensure that caregivers’ needs are addressed.
  3. Describe the importance of providing referrals to community-based support services and understand how to locate local sources of respite care, support groups, caregiver education, safe return programs, and more.

This course was created with generous support from the nonprofit Gary and Mary West Health Institute.

What You’ll Earn

After completing the course, you’ll earn a Verification of Attendance certificate.

CAPC members can earn the following free continuing education credits:

  • Case Management: 1.00 CE
  • Licensed Professional Counselors: 1.00 CE
  • Medicine: 1.00 CME, 1.00 ABIM MOC (Medical Knowledge Only)
  • Nursing: 1.00 CNE
  • Social Work: 1.00 CE (NASW)
  • Social Work: 1.00 CE (NYSED)

A CAPC Member? Login now.

Not a member? Learn more about becoming a CAPC member.

This course is open-to-all at no cost.

Start
1

Take the course

2

Download your certificate

Tools & Resources

Dementia Care Resources for Caregivers

Last Updated: March 21, 2019

Print or email this handout of caregiver resources for education and support.

download

Caring for the Caregiver

Last Updated: March 29, 2019

Validated tools for assessing caregiver health and well-being.

download

Referral to Community Resources

Last Updated: March 29, 2019

Community-based resource locators and support services.

download

Dementia Care Resources in Our Community

Last Updated: April 4, 2019

Fill out this worksheet with contact information for community-based services in your area, and supply to clinical staff or patients and families.

download

Best Practice Caregiving

Last Updated: January 15, 2020

Single source of detailed information to learn about and compare more than 40 evidence-based programs to support caregivers of people with dementia. For use by healthcare and community service organizations, providers, funders and policy makers.

view

Family Caregiver Alliance

Last Updated: February 26, 2019

Resource locator, education, and support for caregivers, including disease-specific information.

view

Home Health Compare

Last Updated: February 26, 2019

Medicare locator of home health agencies.

view

Cognitive Impairment Care Planning

Last Updated: February 26, 2019

Guidance from the Alzheimer's Association on utilizing CPT code 99483.

view

Alzheimer's Association Referral Pads

Last Updated: February 26, 2019

Order free referral pads to easily connect caregivers and people living with dementia to the Alzheimer's Association.

view

CaringKind's Caregiver Storyteller Podcast

Last Updated: May 13, 2019

A storytelling podcast about Alzheimer's and dementia caregiving.

view

Course References: Supporting the Caregivers of People Living with Dementia

Last Updated: February 26, 2019

Course citations. Center to Advance Palliative Care, 2019.

download

A Guide to Alzheimer’s Caregiving

Last Updated: November 11, 2019

Shared by Caring.com

view

Dementia Caregiving

Last Updated: November 11, 2019

Shared by Caring.com

view

Cindy Barton, MSN, GNP, BC. Nurse Practitioner, UCSF Memory and Aging Center.

Andrew E. Esch, MD, MBA. Consultant Center to Advance Palliative Care.

Stefanie Bonigut, LCSW. Family Services Manager. Alzheimer's Association of Northern California and Northern Nevada.

Jim Palmer, MSW, LCSW. Palliative Care Social Worker. Mount Sinai Hospital.

Marta Kazandijan, MA, CCC-SLP, BSC-S. Director, Division Speech Pathology and Swallowing. New York Presbyterian Queens and Silvercrest Center for Nursing and Rehabilitation.

Gina Decker. Caregiver.

Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care.

Komal D’Souza, MD. Palliative Medicine, Northwestern Medicine.*

Karl Bezak, MD. Clinical Assistant Professor of Medicine, Palliative Care and Medical Ethics, University of Pittsburg (UPMC).*

Melissa Bakar, MD. Assistant Professor, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai.

Nora Brennan, RN. Cardiology. University of Pennsylvania Hospital System.

Gail Gongaware, RN, BSN, CCM, MS. Education manager, Education and Training, VNSNY.

Kristin Chouinard, RN, CHPN. Gerontology. North Shore Elder Services, Partners Healthcare.

Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.

*indicates ABIM Peer Reviewer

Contact information: For technical questions about online activity or continuing education credits, contact membership@capc.org or 212-201-2674.

Provided by the Icahn School of Medicine at Mount Sinai.

The Courses

Discussing Your Patient’s Dementia Diagnosis

Disclosing a dementia diagnosis to patients and caregivers in a way that is sensitive, clear, and s…

Communicating About What to Expect as Dementia Progresses

Helping patients and caregivers understand challenges they may face as dementia worsens.

Planning for the Future with People Living with Dementia and Their Caregivers

Enabling patients and caregivers to plan ahead for the financial, legal, and other impacts of demen…

View all courses in the unit

Get the latest updates in your inbox!