Planning for the Future with People Living with Dementia
What You’ll Learn
- Understand how to evaluate capacity in people living with dementia and describe tools and tactics to enhance decision-making capacity.
- Describe considerations and steps to take when engaging in future planning involving health care, personal care and living arrangements, legal arrangements, finances, work and retirement, and safety.
- Understand how to conduct complicated conversations about advance care planning and driving cessation with individuals living with dementia and their caregivers.
This course was created with generous support from the nonprofit Gary and Mary West Health Institute.
What You’ll Earn
Only CAPC members who are logged in can earn the following free Continuing Education Credits:
- 1.25 AMA PRA Category 1 Credit(s)™
- Case Management: 1.00 CE
- Nursing: 1.00 CNE
- Social Work: 1.00 CE (NYSED)
- Social Work: 1.00 CE (NASW)
To take this course, log in. Or, check here to see if your organization is a member.
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Tools & Resources
Search tool from Alzheimer's Association and AARP for help locating community-based services.
Social services locator by zip code connecting people to meal delivery, housing, transit, health care, and more.
Community resource locator by the U.S. Administration on Aging.
Easy-to-read advance directives, including living wills.
Medical orders limited to use among seriously ill adults that indicate specific preferences for life-sustaining treatment.
CMS guidance on billing CPT codes 99497 and 99498.
A video-decision aid for goal setting with family/caregivers of people with advanced dementia.
Resources from the Alzheimer's Association.
Calculator to estimate costs of long-term care facilities in your area.
Developed by AGS and the US Department of Transportation to help healthcare providers enhance driving safety.
Print or email this handout of caregiver resources for education and support.
Course citations. Center to Advance Palliative Care, 2019.
A journal article about a study of the effects of a nonpharmacologic intervention, Music and Memory (M&M), on residents with dementia and/or behavioral problems living in nursing homes.
Course Faculty
Cindy Barton, MSN, GNP, BC. Nurse Practitioner, UCSF Memory and Aging Center.
Andrew E. Esch, MD, MBA. Consultant Center to Advance Palliative Care.
Stefanie Bonigut, LCSW. Family Services Manager. Alzheimer's Association of Northern California and Northern Nevada.
Jim Palmer, MSW, LCSW. Palliative Care Social Worker. Mount Sinai Hospital.
Marta Kazandijan, MA, CCC-SLP, BSC-S. Director, Division Speech Pathology and Swallowing. New York Presbyterian Queens and Silvercrest Center for Nursing and Rehabilitation.
Gina Decker. Caregiver.
Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care.
Peer Reviewers
Komal D’Souza, MD. Palliative Medicine, Northwestern Medicine.*
Karl Bezak, MD. Clinical Assistant Professor of Medicine, Palliative Care and Medical Ethics, University of Pittsburg (UPMC).*
Melissa Bakar, MD. Assistant Professor, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai.
Nora Brennan, RN. Cardiology. University of Pennsylvania Hospital System.
Gail Gongaware, RN, BSN, CCM, MS. Education manager, Education and Training, VNSNY.
Kristin Chouinard, RN, CHPN. Gerontology. North Shore Elder Services, Partners Healthcare.
Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.
*indicates ABIM Peer Reviewer
Contact information: For answers to frequently asked questions about CAPC courses, read the Online Course FAQ. For technical questions about course activity, email [email protected]. For questions about continuing education credits, contact 201-957-0077.
Provided by the Icahn School of Medicine at Mount Sinai.
Disclosing a dementia diagnosis to patients and caregivers in a way that is sensitive, clear, and supportive.
Helping patients and caregivers understand challenges they may face as dementia worsens.
Assessing for caregiver burden and connecting caregivers to needed support systems.