Best Practices in Dementia Care and Caregiver Support
Planning for the Future with People Living with Dementia and Their Caregivers
Last Reviewed: March 4, 2019
What You’ll Learn
- Understand how to evaluate capacity in people living with dementia and describe tools and tactics to enhance decision-making capacity.
- Describe considerations and steps to take when engaging in future planning involving health care, personal care and living arrangements, legal arrangements, finances, work and retirement, and safety.
- Understand how to conduct complicated conversations about advance care planning and driving cessation with individuals living with dementia and their caregivers.
This course was created with generous support from the nonprofit Gary and Mary West Health Institute.
What You’ll Earn
CAPC members can earn the following free continuing education credits:
- Case Management: 1.00 CE
- Licensed Professional Counselors: 1.00 CE
- Medicine: 1.25 CME, 1.25 ABIM MOC (Medical Knowledge Only)
- Nursing: 1.00 CNE
- Social Work: 1.00 CE (NASW)
- Social Work: 1.00 CE (NYSED)
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Tools & Resources
Community Resource Finder
Search tool from Alzheimer's Association and AARP for help locating community-based services.view
Social services locator by zip code connecting people to meal delivery, housing, transit, health care, and more.view
Community resource locator by the U.S. Administration on Aging.view
PREPARE for your care
Easy-to-read advance directives, including living wills.view
Physician Orders for Life-Sustaining Treatment (POLST)
Medical orders limited to use among seriously ill adults that indicate specific preferences for life-sustaining treatment.view
FAQs about Billing the Physician Fee Schedule for Advance Care Planning Services
CMS guidance on billing CPT codes 99497 and 99498.view
A Decision Aid about Goals of Care for Patients with Dementia
A video-decision aid for goal setting with family/caregivers of people with advanced dementia.view
Financial and Legal Planning for Caregivers
Resources from the Alzheimer's Association.view
Genworth: Cost of Care
Calculator to estimate costs of long-term care facilities in your area.view
Safe Older Drives Mobile App
Developed by AGS and the US Department of Transportation to help healthcare providers enhance driving safety.view
Dementia Care Resources for Caregivers
Print or email this handout of caregiver resources for education and support.download
Course References: Planning for the Future with People Living with Dementia and Their Caregivers
Course citations. Center to Advance Palliative Care, 2019.members login
Cindy Barton, MSN, GNP, BC. Nurse Practitioner, UCSF Memory and Aging Center.
Andrew E. Esch, MD, MBA. Consultant Center to Advance Palliative Care.
Stefanie Bonigut, LCSW. Family Services Manager. Alzheimer's Association of Northern California and Northern Nevada.
Jim Palmer, MSW, LCSW. Palliative Care Social Worker. Mount Sinai Hospital.
Marta Kazandijan, MA, CCC-SLP, BSC-S. Director, Division Speech Pathology and Swallowing. New York Presbyterian Queens and Silvercrest Center for Nursing and Rehabilitation.
Gina Decker. Caregiver.
Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care.
Komal D’Souza, MD. Palliative Medicine, Northwestern Medicine.*
Karl Bezak, MD. Clinical Assistant Professor of Medicine, Palliative Care and Medical Ethics, University of Pittsburg (UPMC).*
Melissa Bakar, MD. Assistant Professor, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai.
Nora Brennan, RN. Cardiology. University of Pennsylvania Hospital System.
Gail Gongaware, RN, BSN, CCM, MS. Education manager, Education and Training, VNSNY.
Kristin Chouinard, RN, CHPN. Gerontology. North Shore Elder Services, Partners Healthcare.
Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.
*indicates ABIM Peer Reviewer
Discussing Your Patient’s Dementia Diagnosis
Disclosing a dementia diagnosis to patients and caregivers in a way that is sensitive, clear, and s…
Communicating About What to Expect as Dementia Progresses
Helping patients and caregivers understand challenges they may face as dementia worsens.
Supporting the Caregivers of People Living with Dementia
Assessing for caregiver burden and connecting caregivers to needed support systems.