Best Practices in Dementia Care and Caregiver Support
Critical Decisions in Advanced Dementia
Last Reviewed: March 4, 2019
What You’ll Learn
- Understand the prevalence of and management strategies for common medical complications in people with advanced dementia, including swallowing problems, infections, and pain.
- Describe the pros and cons of long-term feeding-tube placement and hand feeding, factors to consider when eating and swallowing issues arise, and communication tips for discussing these complications with caregivers/family.
- Understand how to assess for pain in patients with advanced dementia and describe non-pharmacologic and pharmacologic strategies for managing pain.
- Describe strategies for identifying and managing infections in people with advanced dementia and decision-making considerations for caregivers/family.
This course was created with generous support from the nonprofit Gary and Mary West Health Institute.
What You’ll Earn
CAPC members can earn the following free continuing education credits:
- Case Management: 1.00 CE
- Licensed Professional Counselors: 1.00 CE
- Medicine: 1.00 CME, 1.00 ABIM MOC (Medical Knowledge Only)
- Nursing: 1.00 CNE
- Social Work: 1.00 CE (NASW)
- Social Work: 1.00 CE (NYSED)
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Tools & Resources
Considerations for Eating Problems in Advanced Dementia
Tips for careful hand-feeding, swallowing safety, and increasing the appeal of food. Center to Advance Palliative Care, 2019.members login
Communication Tips for Discussing Feeding Tubes in Dementia
Four communication tips for clinicians when discussing use of feeding tubes for people with advanced dementia. Center to Advance Palliative Care, 2019.members login
Principles of Pharmacologic Pain Management in People Living with Dementia
Considerations for analgesics prescribing in people living with dementia.members login
Assessing Needs of People Living with Dementia
Recommended validated assessment tools for common comorbid conditions.download
Medicare's Hospice Benefit for Beneficiaries with Alzheimer's Disease
Alzheimer's Association FAQs about the hospice eligibility for people living with dementia.view
For staging and prognosis after a dementia diagnosis.view
Course References: Critical Decisions in Advanced Dementia
Course citations. Center to Advance Palliative Care, 2019.members login
Cindy Barton, MSN, GNP, BC. Nurse Practitioner, UCSF Memory and Aging Center.
Andrew E. Esch, MD, MBA. Consultant Center to Advance Palliative Care.
Stefanie Bonigut, LCSW. Family Services Manager. Alzheimer's Association of Northern California and Northern Nevada.
Jim Palmer, MSW, LCSW. Palliative Care Social Worker. Mount Sinai Hospital.
Marta Kazandijan, MA, CCC-SLP, BSC-S. Director, Division Speech Pathology and Swallowing. New York Presbyterian Queens and Silvercrest Center for Nursing and Rehabilitation.
Gina Decker. Caregiver.
Constance Dahlin, MSN, ANP-BC, ACHPN, FPCN, FAAN. Consultant, Center to Advance Palliative Care.
Komal D’Souza, MD. Palliative Medicine, Northwestern Medicine.*
Karl Bezak, MD. Clinical Assistant Professor of Medicine, Palliative Care and Medical Ethics, University of Pittsburg (UPMC).*
Melissa Bakar, MD. Assistant Professor, Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai
Nora Brennan, RN. Cardiology. University of Pennsylvania Hospital System.
Gail Gongaware, RN, BSN, CCM, MS. Education manager, Education and Training, VNSNY.
Kristin Chouinard, RN, CHPN. Gerontology. North Shore Elder Services, Partners Healthcare.
Philip Higgins, PhD, LICSW. President, Lighthouse Counseling of Salem, Inc.
*indicates ABIM Peer Reviewer
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Disclosing a dementia diagnosis to patients and caregivers in a way that is sensitive, clear, and s…
Communicating About What to Expect as Dementia Progresses
Helping patients and caregivers understand challenges they may face as dementia worsens.
Planning for the Future with People Living with Dementia and Their Caregivers
Enabling patients and caregivers to plan ahead for the financial, legal, and other impacts of demen…