Office of the Assistant Secretary for Health requested information on current research gaps and promising practices.

On March 9, 2023, CAPC submitted comments in response to a request for information (RFI) from the Office of the Assistant Secretary for Health (OASH) on Promising Practices for Advancing Health Equity for Intersex Individuals (also referred to as people with differences in sexual development or DSD). Comments highlighted the need to address care considerations across the lifespan, including as intersex patients experience serious illness and/or transition to end of life. Recommendations included standardizing requirements for the electric medical record on sexual orientation and gender identity (SOGI); revising health care decision-making, visitation, and other policies and procedures to ensure they are equitable and supportive for intersex patients; improving health care coverage policies; standardizing the expectation for a comprehensive assessment including finances and other social determinants of health; and improving staff training in understanding historical considerations for LGBTQI+ individuals, as well as best practices in communication and clinical care.

For more information, read CAPC's response.

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