Foundational Skills for Pediatric Clinicians

Toolkit containing guidance on program design and program operations for the pediatric palliative care program.

Features a series of topical webinars by field leaders and experts, hosted by the Illinois, Pennsylvania, and California state coalitions.

Together for Short Lives provides a resource library on a range of children's palliative care issues including safe use of medications, basic symptom control, and communication.

Short courses on children's palliative care, including guidelines for treating pain and other symptoms, end-of-life care, and grief and bereavement.

ELNEC's curriculum teaches perinatal and neonatal palliative care skills to nurses and health care professionals in the acute setting.

IHI Conversation Starter Kit specifically designed to help parents of seriously ill children who want guidance about “having the conversation” with their children.

This Interprofessional Grand Rounds session will explore how interprofessional teams can help children and families clarify what matters most and align care with their goals and lived experiences.

Video series discussing key issues in pediatric palliative care, including helping parents and families understand the pediatric disease trajectory, the use of medical technology, and parental decision-making.

Collection of teaching modules that use patient and family voices to walk through difficult topics in palliative care.

Booklet written in everyday language that helps children express how they want to be cared for if they have a serious illness.

Based on the Five Wishes advance directive, Voicing My Choices provides a guide for this discussion and was developed specifically for young adults with feedback and guidance from young people living with a serious illness.

One-page guides with actionable tips for conversations with patients with serious illness. Free to download, print and share with others.

This study, published in Journal of Pain and Symptom Management (2019), reports findings from a multidisciplinary workshop on cultural differences in pediatric palliative care, offering communication strategies, training recommendations, and research priorities to reduce conflict and promote culturally sensitive care.

Dana-Farber Cancer Institute/Boston Children’s Hospital Pediatric Palliative Care Approach to Pain & Symptom Management (Blue Book) is a pocket-guide for prescribers on symptom management in children, a tool for identifying areas for self-study, and an education resource for pediatric healthcare professionals.

This review from the Journal of Anesthesia, March 2020, provides a practical guide to improving acute pain management in hospitalized children through effective treatments, awareness, and clinician support.

Learn to define and characterize pain, recognize the prevalence of pain, understand disparities in pain management based on race, ethnicity, and gender.

Learn the components of a comprehensive pain assessment and its importance in safe and effective pain management.

List of age-appropriate pain scales for neonates and young children.

These videos are designed for medical students on their core pediatrics rotation and include topics from the newborn nursery, inpatient, and outpatient domains.

The Pediatric Palliative Care Coalition offers resources for families and caregivers on the topics of sibling support, creative expression, care planning, and caring conversations.

A curriculum to help pediatric clinicians reflect on grief and loss, communicate with children and their families, and manage emotions after challenging patient care experiences.

Educational programming and critical resources to facilitate the mental, emotional, and physical health of grieving children and their families.