Federal Policy Resources
Last Reviewed: March 4, 2019
As federal policymakers respond to increasing pressure to improve the value of taxpayer spending on Medicare and Medicaid, there are numerous policy opportunities in the care of people with serious illness. Palliative care is one of the few solutions that simultaneously improves care quality, reduces burden on family caregivers, and results in more cost-effective use of resources.
Both the legislative branch (Congress) and the executive branch (particularly government agencies such as the Centers for Medicare & Medicaid Services) can play a significant role in improving access to palliative care through workforce training, financing, enhancing accountability, and promoting needed research.
Use this toolkit to learn about issues and opportunities for federal action, explore recent federal palliative care initiatives, and access guidance on policy implementation. If you are developing or have completed a successful federal policy initiative related to palliative care and would like to share your work, please contact email@example.com.
What’s in the Toolkit
The Need for Federal-Level Palliative Care Policy
Learn about the gaps and opportunities in the U.S. health care system for improving access to quality care for people with serious illness.
A National Strategy For Palliative Care
Illustrates the gaps in care for people with serious illness, and the need for a national strategy to ensure reliable access to high-quality palliative care. Health Affairs, 2017.view
National Academy of Science, Engineering and Medicine (NASEM) Roundtable on Quality Care for People with Serious Illness
NASEM has convened experts from across the country to explore the gaps and opportunities for improving the care of people with serious illness.view
National Palliative Care Research Center
A national effort to strengthen the cadre of scientists working to advance the evidence base for access to high-quality care of people living with serious illness.view
2019 State-by-State Report Card
2019 report on growth of hospital palliative care across the fifty states, gaps in access, and federal and state policy recommendations.view
Individual State Palliative Care Reports
State-specific comparative reports on access to hospital palliative care.view
Legislative and Regulatory Recommendations
Review and act on federal policy recommendations to improve access to specialty palliative care and advance quality of care for all people with serious illness.
Introducing a New Administration to Serious Illness
The installment of a New Administration presents a crucial opportunity to educate a brand-new audience on the challenges of living with serious illness and the barriers in caring for these patients and their families/caregivers.view
Palliative Care and Hospice Education and Training Act (PCHETA)
Federal bill addressing the workforce deficiency, public awareness and research funding by expanding physician and nurse training, and supporting research and public awareness initiatives.view
Flex Your Advocacy Muscles with the Palliative Care and Hospice Education and Training Act
Blog post on promising palliative care education legislation.view
Advanced Alternative Payment Model
The American Academy of Hospice and Palliative Medicine (AAHPM) and the Coalition to Transform Advanced Care (C-TAC) are supporting the development of an alternative payment model (APM) for the care of Medicare beneficiaries with serious illness.view
Financing and Payment Strategies to Support High-Quality Care for People with Serious Illness
Summary of a National Academies of Science, Engineering and Medicine roundtable on new care deliery models people living with serious illness, particularly in community settings.view
Models and Strategies to Integrate Palliative Care Principles into Care for People with Serious Illness
Summary of a National Academies of Science, Engineering and Medicine roundtable on recommendations to improve access to palliative care.view
Recommended Standards for Hospitals and SNFs
Structures and processes that all hospitals and skilled nursing facilities need to assure access to high-quality care for people with serious illness.download
Meeting the Needs of Older Adults with Serious Illness
How the principles of palliative care address many of the key challenges faces the U.S. health care system. Book authors: Diane E. Meier. MD, FACP, and Amy S. Kelley, MD, MSHS. 2014.view
Guidance from other organizations working to improve care for people with serious illness.
National Coalition for Hospice and Palliative Care
Home to the National Consensus Project for Quality Palliative Care, the Coalition was founded by the leading hospice and palliative care organizations to coordinate and collaborate on issues and activities of importance to the interdisciplinary hospice and palliative care field.view
Patient Quality of Life Coalition
40+ organizations working to ensure access to high quality palliative care for all people living with serious illness.view
Bipartisan Policy Center
Report on the policy barriers to access and quality, and recommendations to overcome these barriers.view
Duke-Margolis Center for Health Policy
Improve health and the value of health care through practical, innovative, and evidence-based policy solutions.view
Special Edition of the Journal of Palliative Care
March 2018 issue dedicated to quality measurement and accountability for community-based care for people living with serious illness.view
Health Affairs Issue on Advanced Illness and End-of-Life Care
July 2017 issue on policy and delivery issues in caring for people with serious illness.view