National Palliative Care Registry™
In fall 2020, a new national registry for the collection of palliative care data will launch. The National Palliative Care Registry™, the Palliative Care Quality Network (PCQN), and the Global Palliative Care Quality Alliance (GPCQA) will unite into one national system called the Palliative Care Quality Collaborative (PCQC).
PCQC will capture both program and patient-level quality data. It will incorporate the best practices of each system, improve comparison reports, align with national standards, and explore EHR integration. Program-level data will remain free for participating programs.
Visit the PCQC website for more information.
The National Palliative Care Registry, a joint project of the Center to Advance Palliative Care (CAPC) and the National Palliative Care Research Center (NPCRC), was active from 2008-2020, and its goal was to build a profile of palliative care teams, operations, and service delivery. During that time, more than 1,000 palliative care programs received at least one comparative performance report.