Blyth Lord, EdM

Blyth Lord is the founder and Executive Director of Courageous Parents Network, a US-based non-profit that orients, empowers and equips parents and others caring for children with serious medical conditions. Blyth's daughter, Cameron, died of Tay-Sachs disease in 2001. Prior to founding Courageous Parents Network, Blyth worked for over 20 years as a television producer, including at WGBH in Boston, and ABC News in Washington, and she produced the award-winning film, Cameron’s Arc, with the American Academy of Pediatrics to educate primary care pediatricians in working with families from the time of diagnosis through to the end-of-life. Blyth is also a trustee of the Cameron and Hayden Lord Foundation which funds pediatric palliative care research and programming and medical research for treatments of lysosomal storage diseases. Blyth is the recipient of the 2021 Presidential Citation from the American Academy of Hospice and Palliative Medicine as well as a 2022 TORCH award for patient advocacy from Sanofi. Blyth received her BA in History from Yale College, has a Masters in Education from Harvard, and lives in Massachusetts.