Tailoring Dementia Palliative Care Research to Better Engage Hispanic/Latino Patients and Caregivers
Massachusetts General Hospital, University of Colorado & University of North Carolina
Overview
Hispanic/Latino people living with dementia and their caregivers often face barriers to accessing palliative care, including language differences, limited awareness of palliative care services, and cultural differences in how care is discussed and delivered. The Alzheimer's Disease and Related Dementias–Palliative Care (ADRD-PC) program provides dementia-focused palliative care, caregiver support, and care coordination, with adaptations guided by Hispanic/Latino caregivers. These include culturally tailored materials, bilingual and bicultural staff, and communication approaches that emphasize family involvement and culturally relevant decision-making.
Project Team
Liliana A. Ramirez Gomez, MD
Associate Chief, Memory Disorders Division, Mass General Brigham
Hillary D. Lum, MD, PhD
Professor, Medicine-Geriatrics, University of Colorado Anschutz Medical Campus
Caroline Rivers, MPH
Research Team Member, University of North Carolina School of Medicine