“Palliative Care” as an Outcome Measure and its Impact on Our Interpretation of Racial Disparities
Authors: Rachael Heitner, MPH, Brittany Chambers, MPH, MCHES, Allison Silvers, MBA, Brynn Bowman, MPA, and Kimberly S. Johnson, MD, MHS
Citation List
- Ali H, Pamarthy R, Bolick NL, Leland W, Lee T. Inpatient outcomes and racial disparities of palliative care consults in mechanically ventilated patients in the United States. Proc (Bayl Univ Med Cent). 2022;35(6):762-767. Published 2022 Aug 11. doi:10.1080/08998280.2022.2106537
- Alqahtani F, Balla S, Almustafa A, Sokos G, Alkhouli M. Utilization of palliative care in patients hospitalized with heart failure: A contemporary national perspective. Clin Cardiol. 2019;42(1):136-142. doi:10.1002/clc.23119
- Alterio RE, Ju MR, Wang SC, Mansour JC, Yopp A, Porembka MR. Socioeconomic and racial/ethnic disparities in receipt of palliative care among patients with metastatic hepatocellular carcinoma. J Surg Oncol. 2021;124(8):1365-1372. doi:10.1002/jso.26672
- Burgio KL, Williams BR, Dionne-Odom JN, et al. Racial Differences in Processes of Care at End of Life in VA Medical Centers: Planned Secondary Analysis of Data from the BEACON Trial. J Palliat Med. 2016;19(2):157-163. doi:10.1089/jpm.2015.0311
- Chong K, Silver SA, Long J, et al. Infrequent Provision of Palliative Care to Patients with Dialysis-Requiring AKI. Clin J Am Soc Nephrol. 2017;12(11):1744-1752. doi:10.2215/CJN.00270117
- Chu KM, Jones EM, Meeks JR, et al. Decade-Long Nationwide Trends and Disparities in Use of Comfort Care Interventions for Patients With Ischemic Stroke. J Am Heart Assoc. 2021;10(8):e019785. doi:10.1161/JAHA.120.019785
- Chuang E, Hope AA, Allyn K, Szalkiewicz E, Gary B, Gong MN. Gaps in Provision of Primary and Specialty Palliative Care in the Acute Care Setting by Race and Ethnicity. J Pain Symptom Manage. 2017;54(5):645-653.e1. doi:10.1016/j.jpainsymman.2017.05.001
- Cole AP, Nguyen DD, Meirkhanov A, et al. Association of Care at Minority-Serving vs Non-Minority-Serving Hospitals With Use of Palliative Care Among Racial/Ethnic Minorities With Metastatic Cancer in the United States. JAMA Netw Open. 2019;2(2):e187633. Published 2019 Feb 1. doi:10.1001/jamanetworkopen.2018.7633
- Di Luca DG, Feldman M, Jimsheleishvili S, et al. Trends of inpatient palliative care use among hospitalized patients with Parkinson's disease. Parkinsonism Relat Disord. 2020;77:13-17. doi:10.1016/j.parkreldis.2020.06.011
- Islam JY, Braithwaite D, Zhang D, Guo Y, Tailor TD, Akinyemiju T. Racial and ethnic inequities of palliative care use among advanced Non-Small cell lung cancer patients in the US. Cancer Med. 2023;12(7):8567-8580. doi:10.1002/cam4.5538
- Islam JY, Deveaux A, Previs RA, Akinyemiju T. Racial and ethnic disparities in palliative care utilization among gynecological cancer patients. Gynecol Oncol. 2021;160(2):469-476. doi:10.1016/j.ygyno.2020.11.031
- Islam JY, Deveaux A, Previs RA, Akinyemiju T. Racial disparities in palliative care utilization among metastatic gynecological cancer patients living at last follow-up: An analysis of the National Cancer Data Base. Data Brief. 2020;34:106705. Published 2020 Dec 30. doi:10.1016/j.dib.2020.106705
- Johnson T, Walton S Jr, Levine S, Fister E, Baron A, O'Mahony S. Racial and ethnic disparity in palliative care and hospice use. Am J Manag Care. 2020;26(2):e36-e40. Published 2020 Feb 1. doi:10.37765/ajmc.2020.42399
- Khan MZ, Zahid S, Kichloo A, et al. Gender, Racial, Ethnic, and Socioeconomic Disparities in Palliative Care Encounters in Ischemic Stroke Admissions. Cardiovasc Revasc Med. 2022;35:147-154. doi:10.1016/j.carrev.2021.04.004
- Kutney-Lee A, Smith D, Thorpe J, Del Rosario C, Ibrahim S, Ersek M. Race/Ethnicity and End-of-Life Care Among Veterans. Med Care. 2017;55(4):342-351. doi:10.1097/MLR.0000000000000637
- Lee K, Gani F, Canner JK, Johnston FM. Racial Disparities in Utilization of Palliative Care Among Patients Admitted With Advanced Solid Organ Malignancies. Am J Hosp Palliat Care. 2021;38(6):539-546. doi:10.1177/1049909120922779
- Lillemoe K, Lord A, Torres J, Ishida K, Czeisler B, Lewis A. Factors Associated With DNR Status After Nontraumatic Intracranial Hemorrhage. Neurohospitalist. 2020;10(3):168-175. doi:10.1177/1941874419873812
- Nguyen MT, Feeney T, Kim C, et al. Patient-Level Factors Influencing Palliative Care Consultation at a Safety-Net Urban Hospital. Am J Hosp Palliat Care. 2021;38(11):1299-1307. doi:10.1177/1049909120981764
- Rao VB, Belanger E, Egan PC, LeBlanc TW, Olszewski AJ. Early Palliative Care Services and End-of-Life Care in Medicare Beneficiaries with Hematologic Malignancies: A Population-Based Retrospective Cohort Study. J Palliat Med. 2021;24(1):63-70. doi:10.1089/jpm.2020.0006
- Salehi O, Vega EA, Lathan C, et al. Race, Age, Gender, and Insurance Status: A Comparative Analysis of Access to and Quality of Gastrointestinal Cancer Care. J Gastrointest Surg. 2021;25(8):2152-2162. doi:10.1007/s11605-021-05038-6
- Sharma RK, Cameron KA, Chmiel JS, et al. Racial/Ethnic Differences in Inpatient Palliative Care Consultation for Patients With Advanced Cancer. J Clin Oncol. 2015;33(32):3802-3808. doi:10.1200/JCO.2015.61.6458
- Sheckter CC, Hung KS, Rochlin D, Maan Z, Karanas Y, Curtin C. Trends and inpatient outcomes for palliative care services in major burn patients: A 10-year analysis of the nationwide inpatient sample. Burns. 2018;44(8):1903-1909. doi:10.1016/j.burns.2018.07.012
- Singh T, Peters SR, Tirschwell DL, Creutzfeldt CJ. Palliative Care for Hospitalized Patients With Stroke: Results From the 2010 to 2012 National Inpatient Sample. Stroke. 2017;48(9):2534-2540. doi:10.1161/STROKEAHA.117.016893
- Subramaniam AV, Patlolla SH, Cheungpasitporn W, et al. Racial and Ethnic Disparities in Management and Outcomes of Cardiac Arrest Complicating Acute Myocardial Infarction. J Am Heart Assoc. 2021;10(11):e019907. doi:10.1161/JAHA.120.019907
- Suolang D, Chen BJ, Faigle R. Temporal Trends in Racial and Ethnic Disparities in Palliative Care Use After Intracerebral Hemorrhage in the United States. Stroke. 2022;53(3):e85-e87. doi:10.1161/STROKEAHA.121.037182
- Wen Y, Jiang C, Koncicki HM, et al. Trends and Racial Disparities of Palliative Care Use among Hospitalized Patients with ESKD on Dialysis. J Am Soc Nephrol. 2019;30(9):1687-1696. doi:10.1681/ASN.2018121256
- Woo KK, Can A, Chang DW. Racial Differences in the Utilization of Guideline-Recommended and Life-Sustaining Procedures During Hospitalizations for Out-of-Hospital Cardiac Arrest [published correction appears in J Racial Ethn Health Disparities. 2020 Jan 2;:]. J Racial Ethn Health Disparities. 2020;7(3):403-412. doi:10.1007/s40615-019-00668-8