Caregiver Support Initiative

One in four adults and 5.4 million children are providing care for a friend or family member in the U.S. today. And while the majority of caregivers find purpose in this role, far too many also face emotional, physical, financial, and practical challenges, often without assistance. This impacts not only the caregiver’s well-being but can also impact the patient’s care.

Health care organizations are in the best position to provide meaningful support to family caregivers. Indeed, several pioneering hospitals have demonstrated positive outcomes from their Caregiver Support Programs, benefiting caregivers, patients, clinicians, employers, communities, and their own organizations. The Center to Advance Palliative Care (CAPC) is working to disseminate their best practices among health care organizations across the country.

CAPC’s Caregiver Support Initiative currently features the guidance and learning opportunities below. Check back to find additional educational resources over time.

Caregiver Support Program Implementation
A collection of guidance and resources to help caregiver support champions secure leadership buy-in, build an effective program, and optimize revenue.

INCITE Training Program
INcreasing Caregiver Support Implementation through Training and Education (INCITE) is a five-year, NIH-funded program providing in-person training and follow-up technical assistance to clinical and administrative teams from 200 U.S. cancer programs.

Clinical Training: Supporting Caregiver Well-Being
This learning pathway provides clinicians with practical training and information to address caregiver needs and stressors.

Financial Toxicity Position Statement
An overview of proven interventions—at both the organization and state policy levels—designed to prevent significant financial impacts on the patient and family from health care services.