Nurses' Knowledge, Beliefs, Practices & Barriers to Pediatric Palliative Care

Topic: Promoting Best Practices in Pediatric Palliative Care

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Thousands of children in the United States die each year and many more live with illnesses which reduce their quality of life and contribute to suffering. Pediatric palliative care is the specialized medical care of children living with life limiting illnesses and encompasses full spectrum care which focuses on the needs of the child and their family. While there have been great strides in improving the delivery of care to these children, many barriers have been identified which contribute to late referral, or a complete lack of referral to palliative care services. This study examined pediatric nurses knowledge, beliefs and practices regarding pediatric palliative care as well as identified perceived barriers to the implementation of pediatric palliative care across units at an academic children’s hospital. A descriptive cross-sectional web-based survey was used to assess pediatric nursing professionals’ knowledge, beliefs, and practices regarding pediatric palliative care as well as perceived barriers to the implementation of pediatric palliative care across units at an academic children’s hospital. Descriptive and basic inferential analysis were performed on the results of the web-based survey looking at knowledge, beliefs, practices and perceived barriers of pediatric palliative care nurses across all units of a children’s hospital. The survey was sent to all registered nurses on both the inpatient and outpatient units with 331 RN's responding in the four weeks the survey was open. This poster will highlight analysis of the data obtained in relation to nurses' knowledge, beliefs, practices and perceived barriers to pediatric palliative care. The results obtained in this study will provide a better a understanding of what nursing professionals currently perceive about pediatric palliative care in an effort to guide continuing education as well as facilitate process improvement suggestions to reduce barriers of pediatric palliative care in the acute hospital setting.

Author

  • Karen DeAnda, BSN
  • Registered Nurse
  • CHOC Children's Hospital of Orange County
  • 1201 W. La Veta
  • Orange, CA 92870

Co-authors

  • Eileen K Fry-Bowers
  • Kathleen Adlard

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