Resources and References
Palliative Care Value Proposition
Moving to value in health care means improving the quality of care delivered and the outcomes achieved, while reducing unnecessary spending. Most health care organizations are pursuing value and the benefits that accrue under value-based payment, but too few are turning to palliative care to help achieve these goals.
Palliative care—focused on relieving the pain, symptoms, and stresses of a serious illness—changes health care delivery for both patients and their caregivers. Multiple studies and meta-analyses have shown that not only does palliative care improve patient experience and satisfaction, but that it also reduces emergency department (ED) visits, hospitalizations, and days spent in intensive care, thus reducing total spending.
The following articles provide more detailed information on palliative care’s value:
To learn about specific recommendations for action to improve access to palliative care, please visit our State-by-State Report Card on Access to Palliative Care; or download the slides from a recent presentation by Diane E. Meier, MD, Health Care Reform: Implications for Palliative Care.
To learn more about palliative care in general, please see the following palliative care resources:
GetPalliativeCare.org (for patients and families)
- Center to Advance Palliative Care. National Palliative Care Registry Annual Survey Summary.
- Center to Advance Palliative Care. 2011 Public Opinion Research on Palliative Care.
- Center to Advance Palliative Care. Growth Snapshot
CAPC works with the following organizations to advance access to high-quality palliative care for persons with serious illness and their families.
Comprised of the national organizations specializing in palliative care and hospice, goals are to: (1) present a united voice to the public on behalf of providers who care for patients and families living with chronic, debilitating, and life-limiting illnesses; (2) enhance communication and cooperation among member organizations, to coordinate activities to improve care; (3) advocate on behalf of patients and families; and (4) champion public policy and regulatory activities.
Led by the American Cancer Society Cancer Action Network, consensus-based agenda aimed at promoting public policy that will improve and expand access to high-quality palliative care for patients and families facing serious illness. Includes more than 40 nongovernmental organizations dedicated to improving quality of care and quality of life for these adults and children.
Co-convened by the Alzheimer’s Foundation of America and USAgainstAlzheimer’s, works collaboratively to focus the nation’s strategic attention on Alzheimer’s disease and related dementias and to accelerate transformational progress in care and support to enrich quality of life, detection and diagnosis, and research leading to prevention, effective treatment and eventual cure. Includes more than 90 member organizations committed to overcoming Alzheimer’s disease and other forms of dementia.