Resources and References

Palliative Care Value Proposition

Moving to value in health care means improving the quality of care delivered and the outcomes achieved, while reducing unnecessary spending. Most health care organizations are pursuing value and the benefits that accrue under value-based payment, but too few are turning to palliative care to help achieve these goals.

Palliative care—focused on relieving the pain, symptoms, and stresses of a serious illness—changes health care delivery for both patients and their caregivers. Multiple studies and meta-analyses have shown that not only does palliative care improve patient experience and satisfaction, but that it also reduces emergency department (ED) visits, hospitalizations, and days spent in intensive care, thus reducing total spending.

 

The following articles provide more detailed information on palliative care’s value:

“How States Can Expand Access to Palliative Care,” Health Affairs Blog (Sinclair & Meier, 2017)

 “Association Between Palliative Care and Patient and Caregiver Outcomes,” JAMA (Kavalieratos et al., 2016)

“Evidence on the Cost and Cost-Effectiveness of Palliative Care,” Palliative Medicine (Smith et al., 2014)

“An Introduction to Palliative Care for Patients with Serious Illness,” Society of Actuaries article (Meier et al., 2016)

“The Role of Palliative Care in Accountable Care Organizations,” American Journal of Managed Care (Kelley & Meier, 2015)

“Palliative Care Improves Quality of Life, Lowers Costs,” Managed Care (Siderow et al., 2016)

“A Comprehensive Case Management Program to Improve Palliative Care,” Journal of Palliative Medicine (Spettell et al., 2009)

“Achieving Value Through Palliative Care,” American Journal of Managed Care Evidence-Based Oncology (Silvers et al., 2016)

National Palliative Care Registry™ Research in the Field (Various)

“Paying to Keep Seniors Out of the Hospital,” Politico (Meier, 2017)

“Palliative care consultation teams cut hospital costs for Medicaid beneficiaries,” Health Affairs (Morrison et al., 2011)

 

To learn about specific recommendations for action to improve access to palliative care, please visit our State-by-State Report Card on Access to Palliative Care; or download the slides from a recent presentation by Diane E. Meier, MD,  Health Care Reform: Implications for Palliative Care

To learn more about palliative care in general, please see the following palliative care resources:

Palliative in Practice Blog

GetPalliativeCare.org (for patients and families)

 

Additional References

  1. Center to Advance Palliative Care. National Palliative Care Registry Annual Survey Summary. 
  2. Center to Advance Palliative Care.  2011 Public Opinion Research on Palliative Care
  3. Center to Advance Palliative Care. Growth Snapshot

 

Partners

CAPC works with the following organizations to advance access to high-quality palliative care for persons with serious illness and their families.

National Coalition for Hospice and Palliative Care (NCHPC)

Comprised of the national organizations specializing in palliative care and hospice, goals are to: (1) present a united voice to the public on behalf of providers who care for patients and families living with chronic, debilitating, and life-limiting illnesses; (2) enhance communication and cooperation among member organizations, to coordinate activities to improve care; (3) advocate on behalf of patients and families; and (4) champion public policy and regulatory activities.

Patient Quality of Life Coalition (PQLC)

Led by the American Cancer Society Cancer Action Network, consensus-based agenda aimed at promoting public policy that will improve and expand access to high-quality palliative care for patients and families facing serious illness. Includes more than 40 nongovernmental organizations dedicated to improving quality of care and quality of life for these adults and children.

Leaders Engaged on Alzheimer’s Disease (LEAD Coalition)

Co-convened by the Alzheimer’s Foundation of America and USAgainstAlzheimer’s, works collaboratively to focus the nation’s strategic attention on Alzheimer’s disease and related dementias and to accelerate transformational progress in care and support to enrich quality of life, detection and diagnosis, and research leading to prevention, effective treatment and eventual cure. Includes more than 90 member organizations committed to overcoming Alzheimer’s disease and other forms of dementia.