Developing Clinically Relevant Data Collection in Outpatient Palliative Care
Christine Ritchie, MD
Jessica Pullins, MA, MS
Richard Watt
Trent Estes
Matt Jackson
Staci Sudenga
University of Alabama at Birmingham Center for Palliative Care
| << previous | next>> |
University of Alabama at Birmingham Center for Palliative Care Description
We present the development and implementation of an outpatient clinical outcomes database.
Goal
To describe the experience of palliative care outpatients using clinically relevant, psychometrically sound research instruments
Measures
The MD Anderson Symptom Inventory (MDASI), The McGill Quality of Life Questionnaire (MQOL), The Brief Pain Inventory (BPI), The Patient Health Questionnaire (PHQ), and a measure of generalized anxiety disorder (GAD-7)
Data Collected
Patient's self-report clinical outcomes information is collected using a web-based application in the clinic. Reports are printed out in real time for clinical use, and responses populate a clinical database that can be utilized to address research questions related to surveyed clinical outcomes
Graphs/Tables
Figure 1: Screen freeze of patient data entry interfaceTable 1: Database Layout
Figure 2: Outcomes Output
Table 2: Pain scores at initial outpatient palliative care clinic visit
Summary of Results
Collection of clinically relevant clinical outcomes data allows for the development of a "dual use" database. Real time output of clinical outcomes data is clinically useful to care providers in the palliative care clinic and allows tracking of the patient symptom experience across time. The computerized database facilitates targeted, immediate analysis of patient outcomes for scholarly and applied research purposes.
| << previous | next>> |
