For Patients and Families
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Impact of Pediatric Palliative Care
- Carroll JM, Torkildson C, Winsness JS. Issues related to providing quality pediatric palliative care in the community. Pediatr Clin North Am 2007;54:813,27, xiii.
- Contro N, Larson J, Scofield S, Sourkes B, Cohen H. Family perspectives on the quality of pediatric palliative care. Arch Pediatr Adolesc Med 2002;156:14-9.
- Friedrichsdorf SJ, Remke S, Symalla B, Gibbon C, Chrastek J. Developing a pain and palliative care programme at a US children's hospital. Int J Palliat Nurs 2007;13:534-42.
- Hays RM, Valentine J, Haynes G, et al. The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life. J Palliat Med 2006;9:716-28.
- Heller KS, Solomon MZ, for the Initiative for Pediatric Palliative Care (IPPC) Investigator Team. Continuity of care and caring: what matters to parents of children with life-threatening conditions. J Pediatr Nurs 2005;20:335-46.
- Knapp CA, Madden VL, Curtis CM, et al. Partners in care: together for kids: Florida's model of pediatric palliative care. J Palliat Med 2008;11:1212-20.
- Mack JW, Hilden JM, Watterson J, et al. Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol 2005;23:9155-61.
- Pierucci RL, Kirby RS, Leuthner SR. End-of-life care for neonates and infants: the experience and effects of a palliative care consultation service. Pediatrics 2001;108:653-60.
- Weissman DE, Meier DE, Spragens LH. Center to Advance Palliative Care palliative care consultation service metrics: consensus recommendations. J Palliat Med 2008;11:1294-8.
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