Pediatric ICU Palliative Care

• Boss RD, Donohue PK, Arnold RM. Adolescent mothers in the NICU: How much do they understand? J Perinatol 2010;30(4):286-90.
• Boss RD, Hutton N, Donohue PK, Arnold RM. Neonatologist training to guide family decision making for critically ill infants. Arch Pediatr Adolesc Med 2009;163:783-8.
• Burns JP, Mitchell C, Griffith JL, Truog RD. End-of-life care in the pediatric intensive care unit: Attitudes and practices of pediatric critical care physicians and nurses. Crit Care Med 2001;29:658-64.
• Burns JP, Mitchell C, Outwater KM, Geller M, Griffith JL, Todres ID, Truog RD. End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment. Crit Care Med 2000;28:3060-6.
• Burns JP, Rushton CH. End-of-life care in the pediatric intensive care unit: Research review and recommendations. Crit Care Clin 2004;20:467-85.
• Carter BS, Hubble C, Weise KL. Palliative medicine in neonatal and pediatric intensive care. Child Adolesc Psychiatr Clin N Am 2006;15:759-77.
• Catlin A, Carter B. Creation of a neonatal palliative care protocol. J Perinatol 2002; 22:184-95.
• Devictor DJ, Latour JM. Forgoing life support: How the decision is made in European pediatric intensive care units. Intensive Care Med 2011;37:1881-1887.
• Dokken DL, Heller KS, Levetown M, Rushton CH, Fleischman AR, Truog RD, Sellers D, Solomon MZ, for the Initiative for Pediatric Palliative Care (IPPC). Quality domains, goals and indicators for family-centered care of children living with life-threatening conditions. Newton, MA: Education Development Center, Inc. 2001, revised 2002. Available at www.ippcweb.org.
• Donohue PK, Boss RD, Aucott SW, Keene EA, Teague P. The impact of neonatologists' religiosity and spirituality on health care delivery for high-risk neonates. J Palliat Med 2010;13:1219-24.
• Eason EB, Castriotta RJ, Gremillion V, Sparks JW. Withdrawal of life sustaining treatment in children in the first year of life. J Perinatol 2008;28:641-5.
• Institute of Medicine. When children die. 2002. Available at http://www.iom.edu/Reports/2002/When-Children-Die-Improving-Palliative-and-End-of-Life-Care-for-Children-and-Their-Families.aspx. Accessed June 1, 2010.
• Jones PM, Carter BS. Pediatric palliative care: Feedback from the pediatric intensivist community. Am J Hosp Palliat Care 2010 March 2. [Epub ahead of print]
• Kenner C, McSkimming S. Palliative care in the neonatal intensive care unit. In Ferrell B, Coyle N (eds): Textbook of Palliative Nursing, 1st Ed., New York, Oxford University Press, 2005, pp. 959-973.
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• Leuthner SR. Palliative care of the infant with lethal anomalies. Ped Clin N Am 2004;51:747-759.
• Meert KL, Thurston CS, Briller SH: The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: A qualitative study. Ped Crit Care Med 2005;6:420-427.
• Meyer EC, Burns JP, Griffith JL, Truog RD. Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med 2002;30:226-31.
• Meyer EC, Ritholz MD, Burns JP, Truog RD. Improving the quality of end-of-life care in the pediatric intensive care unit: Parents' priorities and recommendations. Pediatrics 2006;117:649-57.
• Munson D, Leuthner SR. Palliative care for the family carrying a fetus with a life-limiting diagnosis. Ped Clin N Am 2007;54:787-798
• Pochard F, Azoulay E, Grassin M. End-of-life decisions for newborn infants. Lancet 2000;356:946.
• Reder EA, Serwint JR. Until the last breath: Exploring the concept of hope for parents and health care professionals during a child's serious illness. Arch Pediatr Adolesc Med 2009;163:653-657.
• Rogers S, Babgi A, Gomez C. Educational interventions in end-of-life care: Part I: An educational intervention responding to the moral distress of NICU nurses provided by an ethics consultation team. Adv Neonatal Care 2008;8:56-65.
• Sumner LH, Kavanaugh K, Moro T. Extending palliative care into pregnancy and the immediate newborn period: State of the practice of perinatal palliative care. J Perinat Neonatal Nurs 2006;20:113-116.
• Truog RD, Meyer EC, Burns JP. Toward interventions to improve end-of-life care in the pediatric intensive care unit. Crit Care Med 2006;34:S373-9.
• Williams C, Munson D, Zupancic J, Kirpalani H. Supporting bereaved parents: Practical steps in providing compassionate perinatal and neonatal end-of-life care. A North American perspective. Sem Fetal Neonatal Med 2008;13:335-340.
• Yang CP, Leung J, Hunt EA, Serwint J, Norvell M, Keene EA, Romer LH. Pediatric residents do not feel prepared for the most unsettling situations they face in the pediatric intensive care unit. J Palliat Med 2011;14(1):25-30.