Family Experience and Surrogate Decision-Making

• Anderson WG, Arnold RM, Angus DC, Bryce CL. Posttraumatic stress and complicated grief in family members of patients in the intensive care unit. J Gen Intern Med 2008;23:1871-6.
• Apatira L, Boyd EA, Malvar G, Evans LR, Luce JM, Lo B, White DB. Hope, truth, and preparing for death: Perspectives of surrogate decision makers. Ann Intern Med 2008;149:861-8.
• Azoulay E, Pochard F, Chevret S, Lemaire F, Mokhtari M, Le Gall JR, Dhainaut JF, Schlemmer B; French FAMIREA Group. Meeting the needs of intensive care unit patient families: A multicenter study. Am J Respir Crit Care Med 2001;163:135-9.
• Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Goldgran-Toledano D, Hayon J, Jourdain M, Kaidomar M, Laplace C, Larché J, Liotier J, Papazian L, Poisson C, Reignier J, Saidi F, Schlemmer B; FAMIREA Study Group. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 2005;171:987-94.
• Boyd EA, Lo B, Evans LR, Malvar G, Apatira L, Luce JM, White DB. "It is not just what the doctor tells me:" Factors that influence surrogate decision-makers perceptions of prognosis. Crit Care Med 2010;38:1270-75.
• Breen CM, Abernethy AP, Abbott KH, Tulsky JA. Conflict associated with decisions to limit life-sustaining treatment in intensive care units. J Gen Intern Med 2001;16:283-9.
• de Miranda S, Pochard F, Chaize M, Megarbane B, Cuvelier A, Bele N, Gonzalez-Bermejo J, Abaob J, Lautrette A, Lemiale V, Roche N, Thirion M, Chevret S, Schlemmer B, Similowski T, Azoulay E. Postintensive care unit psychological burden in patients with chronic obstructive pulmonary disease and informal caregivers: A multicenter study. Crit Care Med 2011;39:112-8.
• Ford D, Zapka J, Gebregziabher M, Yang C, Sterba K. Factors associated with illness perception among critically ill patients and surrogates. Chest 2010; 138:59-67.
• Fridh I, Forsberg A, Bergbom I. Family presence and environmental factors at the time of a patient's death in an ICU. Acta Anaesthesiol Scand 2007;51:395-401.
• Garrouste-Orgeas M, Willems V, Timsit JF, Diaw F, Brochon S, Vesin A, Philippart F, Tabah A, Coquet I, Bruel C, Moulard ML, Carlet J, Misset B. Opinions of families, staff, and patients about family participation in care in intensive care units. J Crit Care 2010;25:634-640.
• Gries CJ, Engelberg RA, Kross EK, Zatzick D, Nielsen EL, Downey L, Curtis JR. Predictors of symptoms of post-traumatic stress and depression in family members after patient death in the intensive care unit. Chest 2010;137:280-7.
• Johnson SK, Bautista CA, Hong SY, Weissfeld L, White DB. An empirical study of surrogates' preferred level of control over value-laden life support decisions in intensive care units. Am J Respir Crit Care Med 2010 Oct 29. [Epub ahead of print]
• Jones T. A proactive communication strategy reduced post-traumatic stress disorder symptoms in relatives of patients dying in the ICU. Evid Based Nurs 2007;10:85.
• Kentish-Barnes N, Lemiale V, Chaize M, Pochard F, Azoulay E. Assessing burden in families of critical care patients. Crit Care Med 2009;37(Supp):S448-56.
• Kirchhoff KT, Walker L, Hutton A, Spuhler V, Cole BV, Clemmer T. The vortex: Families' experiences with death in the intensive care unit. Am J Crit Care 2002;11:200-9.
• Kross EK, Engelberg RA, Gries CJ, Nielsen EL, Zatzick D, Curtis JR. ICU care associated with symptoms of depression and PTSD among family members of those who die in the ICU. Chest 2010 Sep 9. [Epub ahead of print]
• Lee Char SJ, Evans LR, Malvar GL, White DB. A randomized trial of two methods to disclose prognosis to surrogate decision makers in intensive care units. Am J Respir Crit Care Med 2010;182(7):905-9.
• Lemiale V, Kentish-Barnes N, Chaize M, Aboab J, Adrie C, Annane D, Cariou A, Galliot R, Garrouste-Orgeas M, Goldgran-Toledano D, Jourdain M, Souweine B, Timsit JF, Azoulay E, Pochard F. Health-related quality of life in family members of intensive care unit patients. J Palliat Med. 2010 Sep;13(9):1131-7.
• Lloyd-Williams M, Morton J, Peters S. The end-of-life care experiences of relatives of brain dead intensive care patients. J Pain Symptom Manage 2009;37:659-64.
• Malacrida RB, Degrate A, Martinez M, Badia F, Piazza J, Vizzardi N, Wullschleger R, Rapin CH. Reasons for dissatisfaction: A survey of relatives of intensive care patients who died. Crit Care Med 1998;26:1187-1193.
• McAdam JL, Arai S, Puntillo KA. Unrecognized contributions of families in the intensive care unit. Int Care Med 2008;34:1097-1101.
• McAdam JL, Dracup KA, White DB, Fontaine DK, Puntillo KA. Symptom experiences of family members of intensive care unit patients at high risk for dying. Crit Care Med 2010;38:1078-85.
• McAdam JL, Dracup KA; White DB, Fontaine DK, Puntillo KA. Symptom experiences of family members of intensive care unit patients at high risk for dying. Crit Care Med 2010; 38:1078-1085.
• McAdam JL, Puntillo K. Symptoms experienced by family members of patients in intensive care units. Am J Crit Care 2009;18:200-9.
• Meth ND, Lawless B, Hawryluck L. Conflicts in the ICU: Perspectives of administrators and clinicians. Int Care Med 2009;35:2068-2077.
• Myhren H, Ekeberg O, Tøien K, Karlsson S, Stokland O. Posttraumatic stress, anxiety and depression symptoms in patients during the first year post intensive care unit discharge. Critical Care 2010;14:R14.
• Peigne V, Chaize M, Falissard B, Kentish-Barnes N, Rusinova K, Megarbane B, Bele N, Cariou A, Fieux F, Garrouste-Orgeas M, Georges H, Jourdain M, Kouatchet A, Lautrette A, Legriel S, Regnier B, Renault A, Thirion M, Timsit JF, Toledano D, Chevret S, Pochard F, Schlemmer B, Azoulay E. Important questions asked by family members of intensive care unit patients. Crit Care Med 2011;39:1365-71.
• Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, le Gall JR, Dhainaut JF, Schlemmer B; French FAMIREA Group. Symptoms of anxiety and depression in family members of intensive care unit patients: Ethical hypothesis regarding decision-making capacity. Crit Care Med 2001;29:1893-7.
• Pochard F, Darmon M, Fassier T, Bollaert PE, Cheval C, Coloigner M, Merouani A, Moulront S, Pigne E, Pingat J, Zahar JR, Schlemmer B, Azoulay E; French FAMIREA study group. Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study. J Crit Care 2005;20:90-6.
• Russ AJ, Kaufman SR. Family perceptions of prognosis, silence, and the "suddeness" of death. Culture, medicine and psychiatry 2005;29:103-123.
• Shelton W, Moore CD, Socaris S, Gao J, Dowling J. The effect of a family support intervention on family satisfaction, length-of-stay, and cost of care in the intensive care unit. Crit Care Med 2010;38:1315-20.
• Siegel MD, Hayes E, Vanderwerker LC, Loseth DB, Prigerson HG. Psychiatric illness in the next of kin of patients who die in the intensive care unit. Crit Care Med 2008;36:1722-8.
• Sinuff T, Giacomini M, Shaw R, Swinton M, Cook DJ; CARENET. "Living with dying": The evolution of family members' experience of mechanical ventilation. Crit Care Med 2009;37:154-8.
• Stricker KH, Kimberger O, Schmidlin K, Zwahlen M, Mohr U, Rothen HU. Family satisfaction in the intensive care unit: What makes the difference? Int Care Med 2009;35:2051-9.
• Torke AM, Alexander GC, Lantos J, Siegler M. The physician-surrogate relationship. Arch Intern Med 2007;167:1117-1121.
• White DB, Malvar G, Karr J, Lo B, Curtis JR. Expanding the paradigm of the physician's role in surrogate decision-making: An empirically derived framework. Crit Care Med. 2010;38:743-50.
• White DB, Braddock III CH, Bereknyei S, Curtis JR. Toward shared decision-making at the end of life in intensive care units: Opportunities for improvement. Arch Intern Med 2007;167:461-467.
• White DB, Evans LR, Bautista CA, Luce JM, Lo B. Are physicians' recommendations to limit life support beneficial or burdensome? Bringing empirical data to the debate. Am J Respir Crit Care Med 2009;180:320-5.
• Zier LS, Burack JH, Micco G, Chipman AK, Frank JA, White DB. Surrogate decision makers' responses to physicians' predictions of medical futility. Chest 2009;136:110-7.