CAPC Palliative Care Discussion Forum
Pediatric Palliative Care
Hello Everyone!
I am an RN in the pallaitive care department of a very large tertiary academic children's hospital. We are in the process of evaluating our palliative care program structure, and would appreciate hearing from other programs regarding these questions:
1. Please describe the level of involvement of physicians in your palliative care consults. Do you have a palliative care physician see every palliative care patient? If not, how often, etc.
2. When you receive a new palliative care consult, what is the process? Who does it? Can a nurse do a consult independently? Nurse Practitioner? Physician? How quickly do you see patients once the consult is received?
3. What type of patients do you see in your program? Hem-onc? NICU? PICU? Other disciplines?
4. How many patients do you have in your program? (Describe in whatever way is easiest---average number on you service at one time, in a month, in a year, etc.)
5. Do you see both inpatients and outpatients in your program? If you see outpatients, do you have a separate palliative care clinic?
We would appreciate hearing from other programs to help guide some of our thoughts surrounding these issues.
If you would prefer to respond to me privately, feel free to e-mail me at stacy.smith@childrens.com.
Thank you!
Stacy C. Smith, BSN, RN, CHPPN
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THE GOOD NEWS: Stay tuned! In the very near future, we are embarking on a nationwide survey through CAPC to gather this information from as many pediatric palliative care programs as we can. We will let you know when the survey is distributed to all pediatric institutions; at that time, we will make a big push to encourage everyone to make sure the survey is filled out in your own place. In this way, by working together, we can get a better snapshot of pediatric palliative care
All - We are specifically looking for staffing information for other community-based pediatric palliative care programs.
1. How many dedicated FTEs (by type: MD, SW, RN, therapists/counselors - by type, etc.) are dedicated to the program?
2. What is your current/average census?
3. Do you have any inpatient beds? Do you partner with an inpatient facility?
4. Do you share staff with an adult hospice/palliative care program?
5. How do you handle for back-up coverage (vacation/sick)?
If you would prefer to respond to me privately, feel free to e-mail me at jahrens@vnsny.org.
Thank you!