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CAPC Palliative Care Discussion Forum
Pediatric Palliative Care
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| Re:Quality measures for ppc in home program (by StacyRemke on 08/19/2011)
Hi. We have a home based pediatric palliative care program. So far, we have gathered metrics on things like volume indicators, visit frequency, changes over time, etc. It is also good to track pain/ symptom measurements and then effectiveness of treatment. Also, if you can track things like admissions, and ED visits and how those might change with PPC involvement, that would be great, and offers data that is very useful. We also measure family satisfaction and provider satisfaction woudl be good to measure. Also standard of care kinds of metrics, like was advanced directive/ DNR offered? Disussions documented? What volume of PPC patients were offered / have in place these? Are goals of care documented? Updated at recommended frequency? Are all the interdisciplinary members of the team's input represented in the TX plans? etc. The new joint commission standards, or the NHPCO standards might offer good starting places to identify metrics related to standards. Hope that helps. There is a group of home based porgemas working to define some metrics related to current best practice. When we get those ducks in a row, we will be happy to share more ideas.
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