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CAPC Palliative Care Discussion Forum
Pediatric Palliative Care
HIV/AIDS Pediatric PCAuthor: CarlaHorne
Date: Oct 4, 2007 11:01 am
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Hi. I am the Director of Psychosocial Services at a pediatric cancer center on Long Island, NY. My colleagues and I run a small but powerful palliative care program as part of our oncology unit. I would be interested in discussing the challenges of this work with you. My experiences involve the patients themselves and their parents. In addition, you can refer to my website.....NormanFried.com for informtion and essays about end of life issues. I have published a book entitled The Angel Letters: Lessons That Dying Can Teach Us About Living, available at any bookstore or on line at Amazon.com. The book describes in intimate detail how doctors, nurses and psychotherapists and family members can all work together to create a caring environment for dying children to express their wishes and their needs.
I hope this information can be helpful to you and your program.
Best,
Norman Fried
I am helping with the Hopkins' PEPFAR project in Ethiopia, rolling out pediatric ART as well as building capacity in palliative care. Working at hospital level currently - just at the beginning with palliative care...
domestic side: I have directed Hopkins ped/adolescent HIV program for over 20 years and got more formally involved in ped hospice & palliative care 10 years ago.
Where are you working?
Nancy