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CAPC Palliative Care Discussion Forum
Pediatric Palliative Care
Palliative care in the nicuAuthor: Pattydalton
Date: Sep 6, 2007 3:04 pm
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Javier Kane at St Judes, Memphis
Sarah Leggett in Austin TX
Sarah Friebert in Akron,Ohio
I work in a pediatric oncology unit. we see infants only rarely, but I refer you to chapter 4 in my book The Angel Letters: Lessons That Dying Can Teach Us About Living, available at all bookstores or at amazon.com. The chapter discusses the work that doctors, nurses, therapists and family members did together to help a 9 month old who was dying from a medulloblastoma. I believe the themes and concepts written about can be helpful to you.
Best,
Norman Fried
Good Luck
Christy
I would suggest talking with Brian Carter at Vanderbilt (not to put him on the spot) but he has published a NICU protocol and would be very helpful. We don't have a separate protocol for our NICU but there are a number of programs that have started their palliative care programs through the NICU in addition to Vanderbilt -- and perhaps they'll weigh in!
Sarah Friebert