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CAPC Palliative Care Discussion Forum
Pediatric Palliative Care
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[Date]
[Author]
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| Re:Palliative care in the nicu (by Weissman on 09/10/2007)
Hello--I'd suggest you contact one or all of the following:
Javier Kane at St Judes, Memphis
Sarah Leggett in Austin TX
Sarah Friebert in Akron,Ohio
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| Re:Palliative care in the nicu (by NormanFriedPhD on 10/04/2007)
Hi Patty,
I work in a pediatric oncology unit. we see infants only rarely, but I refer you to chapter 4 in my book The Angel Letters: Lessons That Dying Can Teach Us About Living, available at all bookstores or at amazon.com. The chapter discusses the work that doctors, nurses, therapists and family members did together to help a 9 month old who was dying from a medulloblastoma. I believe the themes and concepts written about can be helpful to you.
Best,
Norman Fried
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| Re:Palliative care in the nicu (by torkc on 11/10/2007)
Contact Gay Gale or Allison Brooks at Alta Bates in Berkeley CA. They have published on their program in the NICU
Good Luck
Christy
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