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CAPCconnect™ palliative care discussion forum

Pediatric Palliative Care


Number of threads on this Forum: 84
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Subject Author Posts Last Post
Description
Post Guidelines for contact after the consultation Mardi 3 06/18/2013
We are a consultation service working both in the hospital and related clinics. Our consult is a structured conversation lasting a bit more than an hour. From that we make a document that goes to the family, referring provider and in the chart. We are lo ...
Post Prenatal advance care birth planning .. reference nancykenglish 1 06/11/2013
I know that Advance Care birth planning has been a topic in this Forum. Prof. Karen Hessler and I have just published a guide for decision making and birth planning for families expecting an infant who may live a very short time after birth. The article ...
Post POLST for pediatric patients farleyj 2 06/03/2013
Our institution (a small, transitional care pediatric hospital)currently requires a POLST-like doc to be discussed and signed with the parents of every child who is admitted. Options range from "Full Code" to "Modified Code" (which contains a range of ch ...
Post Billing pediatric medicaid patients - inpatient Meggan 2 05/01/2013
Can any physician speak on how they bill for medicaid pediatric patients that are inpatient and have a palliaitve consult? Thanks
Post Psychologist on team Meggan 2 05/01/2013
Hi Everyone, Does anyone have a psychologist on your inpatient pediatric palliative care team? If so, how do they function? Do they see all patients? Thanks
Post Ongoing data collection Maureenburkedavis 2 03/08/2013
Any suggestions for what data should be collected for an in hospital Palliative Care Program-already established 5-6 years ago. What data points make the most sense to support continuation of a program & would support growth as well. We are a small comm ...
Post FTE and staffing dawsonc 3 02/28/2013
We have a in and outpt consult service for a small children's hospital residing in a large university hospital. Our administration is very concerned at our low number of consults as compared to the adult world. Right now our funding staffing is for a 0.5 ...
Post End Of Life Care Nursing Education Lgarcia2008 1 02/04/2013
Register today for the debut of the End-of-Life Nursing Education Consortium (ELNEC) Advanced Practice Registered Nurse (APRN) course, April 4 & 5, 2013 in Anaheim, CA. A second ELNEC-APRN course will be held in Washington, DC on November 5 & 6, 2013. F ...
Post Healing Touch Practice Meggan 3 03/01/2013
Do any of your inpatient palliative programs use a healing touch practitioner? If so what are your thoughts?
Post Five Wishes kathy 3 01/03/2013
Are people using The Five Wishes? If so, can you talk about when you use it, who introduces it and if you find it helpful? Thanks. Kathy
Post follow up calls and timeframe Meggan 2 01/03/2013
How often do you follow up with the below: -discharge palliative patients -bereaved families Do you follow up monthly, every 3 months, etc? Thanks!
Post follow up calls and timeframe Meggan 2 03/26/2013
How often do you follow up with the below: -discharge palliative patients -bereaved families Do you follow up monthly, every 3 months, etc? Thanks!
Post Agonal breathing pattern and medication Meggan 2 03/26/2013
Does anyone have recommendations for controlling or adding comfort for an intubated patient that has agonal breathing pattern? Is is very difficult for the parents to watch and we are brainstorming different medications and techniques to reduce this. Than ...
Post Pediatric Palliative Care Benchmarks Meggan 2 06/04/2013
I am currently building our PI indicators for our new pediatric palliative inpatient program. I was wondering if any programs are using a pediatric palliative care benchmark to compare to. Thanks so much :)
Post PCA set up at EOL athomas 4 11/14/2012
I'm a nurse at a pediatric palliative care unit.In my previous experience working in the hospital setting, PCAs were always set up with a running IVF, even if fluids were not ordered NS was used at a TKO rate to ensure the med was being delivered and to k ...
Post New Home-Based Medicaid Program in Vermont mmtalbot 2 03/26/2013
Just wanted to share with those who follow the forum, that after months of development, we've just started enrolling children in a home-based pediatric palliative care program for children with Medicaid. Many of our materials are on our Medicaid site at ...
Post staffing a home-based peds palliative care program jahrens 2 10/18/2012
We are a relatively new home-based pediatric palliative care program looking for information about how others staff similiar programs. Any information is appreciated. 1. How many dedicated FTEs (by type: MD, SW, RN, therapists/counselors - by type, etc.) ...
Post Automatic Referrals? SWilloughby 2 10/04/2012
We have a new computer system and I have requested that Dr. Friebert and Dr. Osenga's Palliative Care Referral Criteria be utilized to trigger palliative care referrals. (or at least flag these kids so we can review to make sure needs are being met) My qu ...
Post PICU order sets vcpcrn 1 09/06/2012
We are looking to develop a comfort care order set for our PICU. Does anyone have something like that already in place that we could look at? We have the comfort care order sets for adults in the ICU or on a med-surg floor but wanted to see something mo ...
Post Complementary Therapist Salary HeatherPainter 2 08/14/2012
Hello, My pediatric palliative care program is looking to expand our ability to offer complementary care to our residents. I am looking for a licensed massage therapist that would hopefully have some training in other modalities as well. This will be ...
Post Prenatal planning for baby 38 weeks has Trisomy 18 tclark 4 08/09/2012
Does anyone have guidelines we could use or perhaps set up in our facility for these types of cases? The family is looking at comfort care measures once this baby is born via C-section. Any babies born from week 26 up and are not going to live. NICU bab ...
Post Teleconferences or Skype Consults?? Triley 4 07/31/2012
Our PPC consultation team has noticed a high percentage of missed palliative care consults in the outpatient setting we service. Many families, for a variety of reasons, simply can not drive in to meet with our team unless this occurs in conjunction with ...
Post In-hospital hospice beds for peds patients eriegel 4 01/26/2013
My hospital, which is a tertiary academic medical center with a pediatric unit and services within the same building as the "adult" hospital, is looking into developing GIP hospice beds for patients of all ages: newborn to centenarian. I am a physician on ...
Post In-hospital hospice beds for peds patients eriegel 2 07/16/2012
My hospital, which is a tertiary academic medical center with a pediatric unit and services within the same building as the "adult" hospital, is looking into developing GIP hospice beds for patients of all ages: newborn to centenarian. I am a physician on ...
Post CAPC Audio Conference: July 31, 2012 PCaines 3 08/01/2012
New CAPC Audio Conference Title: Top Strategies for Early Integration of Palliative Care in Children with Cancer Date: Tuesday, July 31, 2012 Time: 1:30 - 2:30 PM Eastern Recent research has demonstrated clear advantages for early integration o ...
Post Practice Fusion free EHR arlingtonpal 1 06/13/2012
Does anyone have experience with Practice Fusion for outpatient palliative care? We are planning to change from Practice Partners.
Post Needs Assessment Tools mmtalbot 2 06/24/2012
I am currently developing a Service Needs Assessment Tool that is meant to identify what services, specific to our program, a child might need and to what level (low, moderate, high). As far as my research has shown, there are very few, if any, validated ...
Post removing nutrition & brain death in less than 37we Meggan 2 04/30/2012
We have also received a request for policies, guideline, and/or protocols regarding: 1) Determination of brain death in the less than 37 weeks gestation infant 2) withdrawal/withholding of nutrition in the infant and/or pediatric patient for a developi ...
Post Appropriate pain management over family objections andreaholtzer 2 04/02/2012
Several times in the past few months, we have encountered families who objected to appropriate pain management for their loved ones who were near death. They objected because they felt the pain medication was causing their loved ones to become sedated. (T ...
Post Database/EMR Recommendations? mmtalbot 2 04/11/2012
I am developing a community-based pediatric palliative care program and currently searching for a database in which we can input data, develop the care plan, etc. In my preliminary search, I've seen some mention of Suncoast and Mumms. Are there any other ...
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