CAPC Palliative Care Discussion Forum
Palliative Care in Long Term Care Settings
I second the motion about "Hard Choices": I have placed a copy of that booklet along with the meditation book that same author wrote in each of the palliative care kits on our floors. In addition, we lend it out to family members at annual care conferences or any time we think a family would benefit from it.
Another very helpful resource for a family if their loved one has dementia and is at end of life is "Comfort Care at the End of Life for Persons with Alzheimer's disease or Other Debenerative Diseases of the Brain: A guide for caregivers". (title is a mouthful, I know!) This booklet is only 24 pages long and its focus on dementia and end of life is superbly done. Unfortunately, it's hard to track down. It comes from the University of Sherbrooke in Sherbrooke, Quebec, Canada. A pdf version is here: http://www.bereavementontarionetwork.ca/pdf/guide_eng.pdf
I get copies from our Regional Palliative Care Network nurse here in Ontario but she was unclear where they're from too. (And no, there isn't any ordering or contact info in this fine booklet!) Note--it is a translation from the original french language and has a few rough spots.
Regards,
Rev. Bev Suderman-Gladwell
Chaplain, Parkwood Mennonite Home
Waterloo, Ontario
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