Center to Advance Palliative Care

...
For Patients and Families
Partner
Sponsor
 
  Print this page
Views

CAPC Palliative Care Discussion Forum
Palliative Care in Long Term Care Settings

Next Reply: Re:family education resources
Previous Message: When a patient passes in a nursing home
Next Message: 2 New Citations Related to Long-Term Care Settings

Post family education resources
Author: vickiruns
Date: Nov 30, 2009 4:52 pm
I am an NP in a LTC facility. We are just beginning a palliative program and are looking for resources/videos/DVDs that would be helpful to family members who are struggling with making decisions r/t advance directives (i.e should we OK IV fluids, feeding tube, etc) as well as helping family members know what to expect at the end of life. Any info would be greatly appreciated!
Replies: order by [Date] [Author] [Subject]
Re:family education resources (by greggv on 11/30/2009)
Check out "Hard Choices for Loving People" at www.hardchoices.com.
Re:family education resources (by chaplainbev on 12/04/2009)
I second the motion about "Hard Choices": I have placed a copy of that booklet along with the meditation book that same author wrote in each of the palliative care kits on our floors. In addition, we lend it out to family members at annual care conferences or any time we think a family would benefit from it.
Another very helpful resource for a family if their loved one has dementia and is at end of life is "Comfort Care at the End of Life for Persons with Alzheimer's disease or Other Debenerative Diseases of the Brain: A guide for caregivers". (title is a mouthful, I know!) This booklet is only 24 pages long and its focus on dementia and end of life is superbly done. Unfortunately, it's hard to track down. It comes from the University of Sherbrooke in Sherbrooke, Quebec, Canada. A pdf version is here: http://www.bereavementontarionetwork.ca/pdf/guide_eng.pdf
I get copies from our Regional Palliative Care Network nurse here in Ontario but she was unclear where they're from too. (And no, there isn't any ordering or contact info in this fine booklet!) Note--it is a translation from the original french language and has a few rough spots.
Regards,
Rev. Bev Suderman-Gladwell
Chaplain, Parkwood Mennonite Home
Waterloo, Ontario
+ Re:family education resources (by chaplainbev on 12/04/2009)
I second the motion about "Hard Choices": I have placed a copy of that booklet along with the meditation book that same author wrote in each of the palliative care kits on our floors. In addition, we lend it out to family members at annual care conferences or any time we think a family would benefit from it.
Another very helpful resource for a family if their loved one has dementia and is at end of life is "Comfort Care at the End of Life for Persons with Alzheimer's disease or Other Debenerative Diseases of the Brain: A guide for caregivers". (title is a mouthful, I know!) This booklet is only 24 pages long and its focus on dementia and end of life is superbly done. Unfortunately, it's hard to track down. It comes from the University of Sherbrooke in Sherbrooke, Quebec, Canada. A pdf version is here: http://www.bereavementontarionetwork.ca/pdf/guide_eng.pdf
I get copies from our Regional Palliative Care Network nurse here in Ontario but she was unclear where they're from too. (And no, there isn't any ordering or contact info in this fine booklet!) Note--it is a translation from the original french language and has a few rough spots.
Regards,
Rev. Bev Suderman-Gladwell
Chaplain, Parkwood Mennonite Home
Waterloo, Ontario

IMPORTANT: In order to post a new message or reply to an existing post in the discussion you must login. If you are not a registered member you may join here.
The statements posted in the forum section of capc.org are opinions expressed by website visitors and do not necessarily represent the viewpoints or positions of the Center to Advance Palliative Care(CAPC). CAPC is not responsible for the factual or legal accuracy of any of the statements posted.


General questions about using the CAPCconnect™ palliative care discussion forum? EmailPatricia.Caines@mssm.edu

Lost login username/password questions? Email: Margaret.Schutz@mssm.edu