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CAPC Palliative Care Discussion Forum
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My husband and I have been serving as parent advisors on a Peds Palliative Care Committee at UNC Children's Hospital in Chapel Hill, NC. I recommend talking to Diane York. She is a nursing professor at UNC School of Nursing who is a strong advocate for palliative care. I don't know if they have a formal orientation, but my case is she has thought of one or would be good to collaborate with in designing one. I have not asked her permission to give out her contact info., but if you go to the UNC website and do a directory search I'm sure you will find an email address and phone number. If you can't, let me know and I'll get her permission to give you her contact info.
Good luck :)